Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
The first symptoms appeared two years ago.
I was diagnosed with Graves'and thyroid eye disease proptosis, limitation in up gaze, high IOP, dry eye and optic neuropathy. I was treated with steroids and thyroidectomy (20/07/2014).
I was treated with 9 gram steroids IV according to EUGOGO study with a rapiddecline in the prednisone treatment and was treated with total of 8 gram P.O prednisone daily.
At first I was diagnosed with thyroid eye disease with diplopia,limitation of gaze, proptosis, swelling of soft tissue, surface disease an no sing of optic neuropathy.
Under the steroids there was no improvement in the proptosis and surface disease and there was a suspect deterioration in my left visual field.
At the 27/10/2014 I went through a bilateral endoscopic medical wall orbital decompression with improvement in the visual field after the operation.
During my steroid treatment my IOP values were very high and started an anti-glaucoma treatment. I developed an allergic reaction to the topical glaucoma drop and because of that I stopped this treatment. Today my IOP values are around 22-24 mmHg.
My active problems are eyelid retraction, restrictive strabismus and surface eye disease secondary to exposure.
For dry eyes I'm treated by Hylocomod drops and Duratears paste and Restasis. Sometimes feel blurred vision.
Today I suffer from double vision and sometimes I have a feeling of a foreign body.
I'm a candidate for two surgeries the first one is OP and the second one is called BUL recession. Between January and March this year my double vision worsened and because of that I have to wait a few months in order to gain stability.
My TSI levels in the past year are between 3500 to 4500 H (The normal levels are between 0.0 140.0).
My question to you is if you have any treatment to reduce the biological antibodies level (TSI) in order to improve my health condition?
I was diagnosed with Graves'and thyroid eye disease proptosis, limitation in up gaze, high IOP, dry eye and optic neuropathy. I was treated with steroids and thyroidectomy (20/07/2014).
I was treated with 9 gram steroids IV according to EUGOGO study with a rapiddecline in the prednisone treatment and was treated with total of 8 gram P.O prednisone daily.
At first I was diagnosed with thyroid eye disease with diplopia,limitation of gaze, proptosis, swelling of soft tissue, surface disease an no sing of optic neuropathy.
Under the steroids there was no improvement in the proptosis and surface disease and there was a suspect deterioration in my left visual field.
At the 27/10/2014 I went through a bilateral endoscopic medical wall orbital decompression with improvement in the visual field after the operation.
During my steroid treatment my IOP values were very high and started an anti-glaucoma treatment. I developed an allergic reaction to the topical glaucoma drop and because of that I stopped this treatment. Today my IOP values are around 22-24 mmHg.
My active problems are eyelid retraction, restrictive strabismus and surface eye disease secondary to exposure.
For dry eyes I'm treated by Hylocomod drops and Duratears paste and Restasis. Sometimes feel blurred vision.
Today I suffer from double vision and sometimes I have a feeling of a foreign body.
I'm a candidate for two surgeries the first one is OP and the second one is called BUL recession. Between January and March this year my double vision worsened and because of that I have to wait a few months in order to gain stability.
My TSI levels in the past year are between 3500 to 4500 H (The normal levels are between 0.0 140.0).
My question to you is if you have any treatment to reduce the biological antibodies level (TSI) in order to improve my health condition?
I am sorry to read what is going on for you. Your TSI levels are very high to go along with your TED and other eye problems.
I would get in touch with Elaine Moore at: elaine-moore.com as she has a great website with articles and has written a book on TED.
I find with getting my TSI down with using LDN (Low Dose Naltrexone) and avoiding the dietary triggers as well as any triggers from the household and personal products to do well. My las TSI from several years ago was at 24. I have to consume as much organic as possible and have organic and non GMO in the products I use on myself and for the house.
If you are into eating chocolate and other foods high in Oxalates, it might be worth into lowering these down as the possible cause of inflammation to the eyes and other issues in the body. I have RA (Rheumatoid Arthritis) so I am working on this and for the health of my eyes as well and stomach. I don't really have TED, but whatever I am able to do to keep things balanced and to work on my Leaky Gut issues is a plus for me.
{{{hugs}}} :-)