How's your thyroid levels of the Free T3 and the Free T4? If too low, could cause problems. If your FT3 is low, you can try Selenium (or eat two or three Brazil nuts per day) to help with eyes and to raise the FT3 levels.

Also can try Milk Thistle for the eyes as well as Flaxseed oil, or the Omegas (I take Salmon oil), to try for helping with the eyes.

{{{hugs}}}

Each time I see my dr the thyroid levels are good thanks for reponding to me I have felt so alone no one seems to understand how hard it is to see I even went to university of utah with no results so will see yet another one soon. Thank you for talking to me

Hi:

Please get paper copies of the last few lab results and post here along with the lab reference ranges. We can better help you with additional suggestions once we see the labs.

{{{big hugs}}} :-)

I will do that I have access on ky patient portal

Tsh 1, 333 u1u/ml 3rd generation
T4 1.03 ng/dl
Those were in november, nog sure if this what you needed thiscwhat was listed sorry I dont have more for you

You're not alone. (My double vision keeps getting worse. I can see the "misalignment" of my eyes. One eye keeps getting blurrier.) I will hope and pray for you that the steroids help improve your situation. I can't offer any "technical" information, since I'm kind of new to Graves and GO, but I can offer support! Others here are wonderful with the technical stuff.

Hugs!

Casanderson I so appreciate your response to me I have felt so alone in this I cry everyday I hope that with that ct scan that they can see the problem. How long have your eyes been like this. I have read so much info about this and all seem to think that it could settle down and improve not really gonna hold my breath on that tho because it gets worse daily. Please sray in touch I appreciate you. Merry Christmas

(((Hugs)))

I hope the CT scan gives you some answers for treatment. It's sure hard to wait for things to "settle down." Eye dr. says some things most likely will improve, like the swelling, but most likely not the misalignment, although I'm hoping for the miracle. :).
(I've had the double vision for the past 2 months or so; some grittiness and lid retraction and stuff before tha).

Are you able to drive? I still do all though its difficult at times better during day hours and in the dark its just ok but if its foggy or snowing or rainy I get very scared. My eyes cross more in the morning after waking up and at times the pain is severe. Are your eyes or eye bloodshot all the time. My right one is always and very "sandy gritty" feeling. As soon as I get scan results I will fill u in. GOD BLESS YOU

Without knowing what your Free T4 lab reference range is, I can't comment too much. However if I compared it with mine, I would say that your FT4 is too low and you are heading hypO.

What meds are you on? How much and how often?

Also please get the Free T3 done. It is another thyroid hormone which effects everything in the body including the eyes.

{{{hugs]]]

I still drive. Nights and bad weather are the same for me. I don't like it. I have to tilt my chin up until I get a single image, and I cover an eye if it gets ridiculous, or if my neck hurts (I commute a ways to work.) Mornings are the same for me, but my eyes don't always hurt, although some days I'm very light sensitive. I have an area of chemosis on one eye that causes people to ask me often if I have pink eye. (I just assure them I'm not contagious.).The eye dr gave me some prescription anti-inflammatory eye drops to help with this when it had gotten worse (bigger, more red, and more painful) than usual. The drops sting, but they seemed to help. Today, someone at work that used to be a nurse asked how I was doing, then said "I'm asking because the changes in your eyes are very visible." I sort of hoped I was imagining some of the changes in appearance and no one else could see, but I guess not. But, I can still work, the prisms are still there for me if I need them at some point, and I'm trying to stay positive! Keep us posted. Hoping for good things for you!

Gosh the stuff you are telling me is all the same for me. I too close one eye to drive and my boss said she can see my eyes changing daily. No results yet from scan. I hope you have a nice weekend. Yesterday my eyes werent too bad but today its worse than ever. Now I am getting fat cheeks from the steroids. Damn I hate my life right now. I will 9ray for you and I look forward to seeing your messages
(((Hugs)))

I take levothyroxin 150 micrograms

Hi lynndm...in Nov 07 I was diagnosed with Graves Disease and TED...thyroid eye disease...I had an acute case of the eye disease. My eyes had bulged and locked in the downward position with the left eye pointed to the left...it was horrible. I had sever double vision but it was side by side double vision. For me...the eye part of this disease was far worse to deal with than the graves part of this disease.

With hard work and dedication to healing my immune system...I went into remission with both the TED and Graves. My eyes went back into my sockets but came to rest in the wrong position...I had to have corrective surgery to repair the double vision in 2011...I have been symptom free now since then. I have pictures of my TED journey on my profile page under photos.

I did tons of research while I was going though this and as far as the TED...the book on TED by Elaine Moore was the most helpful. I followed her advise and credit her for my remission. Its a must have book if you are dealing with TED as well as Graves.

I know all the emotions that goes along with TED...it truly sucks but there is light at the end of the tunnel...its a disease that eventually burns itself out...it has a beginning a middle and an end...Big Hugs...Kathy

I am sorry you are suffering so much, and also pray that you will get the help you need.

I was originally told I had the Graves' Ophthalmopathy, but since then, the doctors are in a disagreement about it. Dr. Katz at the Moran Eye Center in SLC diagnosed me with the Graves' Disease early in 2009.

In any case, I have had double vision since childhood which got a lot worse just before I was diagnosed with the GO or TED. I never had the protrusion that is so common with GO and not a lot of pain, puffiness or clouded vision. I did have weeping eyes & redness which went away.

I had surgery in December of '09 to correct the double vision and I had warned the surgeon that I had already had eye muscle surgery when I was about 17, but during the operation he was surprised that my left eye was already adjusted to the maximum. He adjusted the right eye anyway, but it wasn't good enough to fix the problem. He wanted to try the outer muscles but he needed to be more prepared for that, and the outcome is never ideal. I refused.

I made myself what I call 'partial blinders' for my glasses which help me. I have posted photos which you could see if you go to my profile (they are 'public'.)

I can drive on familiar, local roads for a limited time, and I usually seek out parking spots that I can drive through so I don't have to back up. I can also read and type on the computer without having to shut an eye or to use a patch, so I'm not as limited as I once was.

It is the auto-antibodies that cause the GO, and the doctors haven't yet figured out how to control them--except for the steroid treatment. They wanted to do RAI when I was first dx'd, but I refused because I had always had hypo symptoms which were always ignored by the doctors and I didn't trust them to treat me adequately if they made me totally hypo. Then, after I had been treated with Methimazole (MMI), an anti-thyroid drug (ATD), for a few months, I heard that they stopped recommending RAI for patients with GO because the condition often worsens.

I have reasons to believe, however, that the GD antibodies will subside when we are adequately treated, particularly with Cytomel (Liothyronine), the replacement hormone for T3. This still might not fix the double vision, but could keep it from getting worse.

I have been seen/treated by 3 Endocrinologists so far, and was able to be treated with LT3 for the last 6 months plus Levothyroxine (LT4) for about 2 months by my primary care physician. Now my PCP wants me to see another Endo, and I have chosen to go to the U of U this time. I hope to be a 'case study' for continued optimum treatment of the thyroid. It would almost make all my prior suffering worthwhile if it would result in a medical breakthrough for everyone.