Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Hello. I had posted on here once under Goiter but they dx me with Graves. I had a thyroid scan last week. The 5 hr scan showed 97% still in me and at 24 hrs. 87% still in me. They are sending me to an Endo now. The family dr said about RAI which I"m not thrilled with and would like to start on meds to see about remission. I heard some can go into remission. I'm reading so much and seeing that most people when they get RAI end up being Hypo and then again sometimes Hyper how can that be if they zap it? Also I asked about surgery to remove 1/2 I'd rather have that than RAI I dont like that stuff in my body. I'm also seeing that people battle with this constantly is there anyone out there that got RAI and was ok? The dr said there's a 5% chance a year that you can end up Hypo. I know Hypo is easier to treat. So if what the dr said is correct why is ther so many that become Hypo within weeks or RAI are the docs lying to us?? I'm knew to this but have read alot and the dr knew that when I was there.He knew I was educated and not just going to do whatever. I've cried 1/2 the day today cause I just dont know what to do. I only have shaky hands and feel hot alot. Had one episode of racing heart but thats it. Noother symptoms. Any help is appreciate.
I can't answer for those who have had an RAI and didn't do well. Some do and some do. Unfortunately there's no easy fix for any thyroid problem.
I use a small doses of MMI (Methimazole) for the last seven years now. I had only a small hypER blip for several months when I ate wrong and took the 'wrong' supplements that got me hypER again.
The key here is to research, research, and research all you can. Read thyroid people's blogs. Figure out what to do that fits your needs best.
Read my posts (do a search) and you'll see that if one decides to stay on ATD (antithyroid drug), it's not very hard to keep stable with getting labs done of the Free T3 and the Free T4 and make the necessary slight dose adjustments. Some people stay forever on the same doses. Also watching out for the 'triggers' in your diet.
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Mine includes: Iodine, Soy, dairy(because of the cows udders washed in Iodine), MSG, Aspartame, seafood, Red #3,etc.
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