Find another doctor if this one is dosing to get the TSH to come up. With the PTU being taken, both Free T3 and Free T4 have to be looked at.

Try Top Thyroid Doctors database:

http://thyroid.about.com/cs/doctors/a/topdocs.htm

{{{hugs}}}

Unfortunately I can't find any Endo's in Edmonton, Alberta Canada. This directory provided some GP's, but I'm currently happy with mine. I'm going to see what I can find because I really want to make a change and find an Endo that will communicate with me directly, and I don't know, maybe even SEE me physically to find out how I'm doing, ask me questions about how I'm feeling instead of having his nurse call me and tell me to triple my dose.

If he did, he would probably see, at the very least, that my eyes (which were only slightly showing some bugginess) have improved immensely. I was having trouble with my vision and couldn't wear my contact lenses if I was going to be at work, or reading for any length of time. They ached almost every morning... and now I can see properly, I can wear my contact lenses and I haven't had any aching at all in two months.

Somehow with Graves' Disease, I have really learned how to be rebellious.

I would say: "If you don't want to go back on the 600 mg, DON'T DO IT."

There comes a time when you have got to take as much control over your own health as you can.

When I look at your labs, I see that your free T4 has dropped very fast from the first part of February to the end, and you were on 100 mg PTU twice a day, right? Then it was tripled? Overkill, imo.

You managed your new dose for 5 days, then went back to the old dose, right? That resulted in the March labs, which were in the normal range, except for TSH.

Since March labs, you have taken even less than that, down from 200 mg daily to 75 mg daily. Is that right? Is that what you did for the month before your labs at the end of April? If so, then that seems nearly right since your labs only went up a little.

If I were you, I would continue to take the 25 mg for the first and second doses of the day, but take 50 mg at night. That might put you back into the normal range, and the larger dose at night would be more tolerable while you sleep.

How far do you have to travel to see your Endo, currently? Did you only see him once because of the distance?

I am currently looking forward to seeing my third Endo. Going out of state, a drive time of about 8 to 9 hours just to see someone whose emphasis within the Endocrine field most clearly matches what I continue to have problems with. [I mostly think I am hypo after GD treatment was stopped 5 months ago.]

Thank you ladies! And Fern, I am taking your sage advice and continuing to 1/4 my PTU, taking 25mg twice per day, and then a 50 at night before bed.

Fern, yes I took the 600mg dose for the 5 days (feeling awful almost immediately) and came back off after communicating my labwork on here. Then I reduced back to what I was taking prior - the 200mg a day, although I didn't take it in two doses of 100 like he had prescribed, but just over a 1/4 3 times a day, until I decided to see how going to 1/4 went, resulting in my end of April labs.

I don't have to travel to see my Endo at all, his offices and the hospital he also treats out of, are both 5 minutes away from me. It seems almost impossible to get in touch with another Endo. I checked out the College of Physicians and Surgeons of Alberta website for contact info, and I called around to a few but no one has returned my call. I am gathering that they won't see a patient unless they are referred. I've only seen my Endo once because he has never booked me in to see him. I suppose I expected them to call me in to discuss my labs instead of just leaving me messages with my new dose recommendation. My friend who has Graves has been told to make appointments regularly. I suppose I was only diagnosed 3 and a half months ago... maybe I'm over-reacting?

MMouse, thanks for your reply, I see now where I got confused with the dosing. Hopefully you are feeling better now. Let us know how it is progressing.

Both Endos I have seen so far have booked me for the next appointment before I left the office. If the Endo won't see you, what is the point in having one just 5 minutes away?

I looked on this site, which seemed to give a very good recommendation and comments about Dr. Jacque Romney, but poor remarks about his colleague Dr. Ellen Toth.

http://www.ratemds.com/doctor-ratings/83196/Dr-Jacque-Romney-Edmonton-AB.html

I hope my Endo #3 in Denver will manage my condition without seeing me very often, though, since I am 8 hours away. Really, if she gives me at least as much medication as what I need, I can always "manage" my own care by taking less if it suits me. LOL