Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
My GD started 4 years ago
My endo has moved me from Block replace to titration dose, not very skilfully, I had a nasty hypo couple of weeks but anyway
For the last few weeks I've been on carbimazole 5mg/d and NO levo
My new bloods are TSH 7, (range 0.3-5, yes I know or less). FT4 8 (range 7-14). The Trab a month ago was 7 (range 0-1.5) which is certainly +ve but not that high.
The endo says that reducing the carbimazole would be to make it a "practically homeopathic dose". Is that right, reading here it seems not uncommon for people to be taking lower doses?
Should I just stop straightaway, or is there any sense in taking 1/2 a pill for a week or so? Or stay on 5mg and add in some levo (I'm ok with just levo)
What do you think please?
Thanks
Steve
My endo has moved me from Block replace to titration dose, not very skilfully, I had a nasty hypo couple of weeks but anyway
For the last few weeks I've been on carbimazole 5mg/d and NO levo
My new bloods are TSH 7, (range 0.3-5, yes I know or less). FT4 8 (range 7-14). The Trab a month ago was 7 (range 0-1.5) which is certainly +ve but not that high.
The endo says that reducing the carbimazole would be to make it a "practically homeopathic dose". Is that right, reading here it seems not uncommon for people to be taking lower doses?
Should I just stop straightaway, or is there any sense in taking 1/2 a pill for a week or so? Or stay on 5mg and add in some levo (I'm ok with just levo)
What do you think please?
Thanks
Steve
Carbimazole doses can get cut down (with a pill cutter) as low as 0.625 mg.
{{{hugs}}}
---The Trab a month ago was 7 (range 0-1.5) which is certainly +ve but not that high. ---
Is that point .07 or .7 or seven ?
Trab range - 0 - 1.5 IU/L (under 1.5) means you don't have graves disease, more than 1.5 means you do
When the disease was active, when my eyes got bad and so on then the level was up to 40. Once it got "under control", meaning I was more or less euthyroid, my eyes weren't red and irritated any more, the levels have wavered between 3 and 9. I interpret this to mean the disease is being kept in check, but is still all primed and ready to erupt again given the chance.
Since I wrote the post yesterday I've found one study which says it might be wise to keep taking low dose carbimazole. PMID: 19092290
Thanks again