Hi all haven't been on for a while just haven't had the right frame of mind to be honest iv had two lads back which say I'm in range,think it was 3.5 so my Endo is keeping my on the same ATD dose which is only 5mg every second day as he thinks this should stay the same for 18 months then he's gonna try block and replace.my eyes are at their worst according to my opthalmologist so I'm to have another CT scan to see the musles at the back then he too is going to decide which surgery would be best he thinks maybe just lid surgery or even some Botox! Had anyone else heard of Botox for TED? Anyway so I'm supposed to be feeling ok but I dont!! Still just want to sleep all the time,muscles are still sore,still have the odd palp,real bad headaches which last for 3 days!! And this shoulder blade pain which takes my breath away! Now here's the scary bit!!! My sister went to a psychic for herself not me and the psychic started to cry and told her how I'll I was,told her all about the antibodies roaming around my blood and the pains in my head she described me perfectly,how I find it hard to walk and spend most of my day in bed etc!! Then she told her I needed to get an MRI done as there is something going on in my brain and to get my bones checked the bad news is she said I have MS!! I know they are not to tell u bad news but she did I now I can't get it out of my head as I have asked before if graves could lead to MS but got no answer I looked online and it says they is a significant co-occurance of MS with graves! What should I do?? What would u do??
Sorry for the long post,
Selina x