Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Hello
Third time around, I have Graves yet again. Went into remission twice. Next week I will see the Endo, and again, she will say, RAI.
I don't want RAI,
I already suffer chronic migraines.
I am a dancer, an artist and a scuba diver and I refuse to let life get me down with my other affliction.
I DO NOT WANT to be hypo!
But what is it that you non RAI's do to keep the insanity down. I have read elainemoore's web site and there is so much info. give it to me simple.
do you just say no to the Endo and be on the daily ATD pills?
Do you take other suppliments? Foods?
I feel locked in and don't know what to do moving forward, even after all these years.
Third time around, I have Graves yet again. Went into remission twice. Next week I will see the Endo, and again, she will say, RAI.
I don't want RAI,
I already suffer chronic migraines.
I am a dancer, an artist and a scuba diver and I refuse to let life get me down with my other affliction.
I DO NOT WANT to be hypo!
But what is it that you non RAI's do to keep the insanity down. I have read elainemoore's web site and there is so much info. give it to me simple.
do you just say no to the Endo and be on the daily ATD pills?
Do you take other suppliments? Foods?
I feel locked in and don't know what to do moving forward, even after all these years.
I have been taking wee doses of MMI for 12+ years now. The doses are any where from 1.25 mg to 1.875 mg and sometimes upwards to 2.5 mg. But this was before I really focused on eating organic, non GMOs and avoiding a lot of chemicals and toxins in personal and household products. I am very reactive what personal products used on me and go for the organics and non GMOs.
{{{hugs}}}
But if I can maintain on small doses of MMI, then I will do this route. My biggest fear in all of this RAI stuff is that it will remove my energetic personality and I've seen enough horror stories.
Thank you again.
Your comment about being a 34+ year migraine sufferer made me think of this. I had only been suffering from the ocular migraine for something like two years.
I do know what a lot of work is put into with trying to balance things from what I eat and being exposed to. I just keep working at it until I find the answer.
{{{hugs}}}
The other thing I did was get extensive blood work and allergy work up from a naturopath.
I had no allergy symptoms but my bloodwork showed multiple reactions to certain foods. I had to cut them out.
I also had my kids tested and even though we have mostly
Organic/non-gmo, they have chronic allergies to wheat, dairy, eggs and soy.
Hope you will feel better soon!!!
Have you tried what Aronia suggested ! Acetyl-l-carnitine , you can even order it on-line, it would even help now since you haven't been able to get to the Dr for meds yet.
You can even take Acetyl-l-carnitine when you are on the thyroid meds when HypER, just not when HypO.