Graves' Disease Support Group
Graves-Basedow disease is a medical disorder that may manifest several different conditions including hyperthyroidism (over activity of thyroid hormone production), infiltrative exophthalmos (protruberance of one or both eyes and associated problems) and infiltrative dermopathy (a skin condition usually of the lower extremities). This disorder is the most common cause of...
Hi guys I'm about to go and see my endocrinologist (sorry if spelling is wrong lol) after being off my meds for a month as them turned me severely underactive in a couple of months which shocked my doc at the time.I feel that my levels have returned to overactive as my hair has started to fall out again :( and my tremors are back plus the palpitations,and my legs are so weak again I cant walk up the stairs without stopping a couple of times! But hey I could be wrong so il update when I get back,fingers crossed :)
deleted_user
Wow! Yeah keep us updated. There have been times where I thought I was hypo but I was actually hyper! It's tricky sometimes.
deleted_user
One more thing. I have been hyper alot in my life. It was not until I was swinging from hypo to hyper and back (after RAI) that my hair started to fall out. As I stabilized so did my hair loss. I'm hoping to bounce back from that now.
Snippy
Some of my symptoms are the same. I can never be sure. I just try and take a deep breath and cry over every hair that I lose.
faceache30
Ok guys I'm back from my Endo's,well where do I start,I was right my levels are on the up but not a big amount so I'm now back on the beta-blockers and carbimozole.he said I'm a very unusual case! With graves it either over produces the hormone or it blocks it! Mine appears to be doing both so is gonna be hard to stablise,and in his 15 years of work he's only seen about 8 cases like this :( he said it properly will have to come out (surgery not RAI because if my eyes) but he can't offer it me yet as it's not the norm and still may stablise ( unlikely) he also said that my spinal surgeon won't touch me while my levels are all over the place so I'm going to be in pain with my coccydynia for a while :(( this makes menreally sad as it's so painful but hey once the thyroid is sorted so can this be hopefully :) so there I am guys back on the mess and back to see him in 10 weeks unless I need him sooner thanks for the replys :))
deleted_user
"With graves it either over produces the hormone or it blocks it!" Isn't that Hashi's? Not Graves
faceache30
@krisann79 Ohh I'm not sure don't really know about hashi's my Endo just keeps sting it's graves il have to look into it!
Snippy
Hope you do weel and are not in to much pain with your back.
deleted_user
I'm Sry u are suffering. I hope u feel better...or at least they give u some awesome owing meds..keep us updated.
faceache30
Thanks for the support guys I asked for stronger mess today but they said the next step up is morphine!! And that has many side effects so the codeine will have to do for now :) I have just quite my job so I can rest abit more now xx
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