could you post your labs?

You may also want to have your Potassium levels checked as well. I find if these are too low that the eyes can feel gritty and sand paper feeling.

{{{hugs}}}

my tsh was 1.69 my doctor doesnt test the other ones he goes by tsh

I would get my Free T3 and Free T4 checked. The TSH alone doesn't give the complete picture whether in remission or not.

{{{hugs}}}

Although we do not usually pay attention to the TSH...when thats all you have...you need to work with it. A normal functioning thyroid has a TSH of around 1. When on meds...if your FT4 is in a good place your TSH will be anywhere between .50 and 1.2 Everyone is different so this is why its so hard to tell where you are at by TSH alone. For me...if my TSH was where yours is at...I would be very hypo. I am at the point where I know my body so well...I can adjust my meds by my TSH...but that has taken years of practice.

I highly urge to to get a new doc that will test your FT4 and FT3...these are your thyroid hormones. If that is out of the question and your doc refuses to run the right tests...shoot for your TSH to sit at around 1. This should help lower your antibodies and help with your eyes...Big Hugs...Kathy

Sorry...forgot to mention...if you are not on meds with these levels...you are in need of Synthroid in order to bring your TSH down to around 1.

maybe that is why i am having so many issues still, i havent been on any medicine for well over a year now and i went through menopause in this past year with no meds lol

Mmz knows how you can get your FT4 tested independently of your doc. It will cost you but apparently its a reduced amount. I cant help you with that because I live in Canada...perhaps she could provide you with that info. You have to look at it as an investment in your health and you only need to do it quarterly...its better than nothing.

It is really important to get this done...as you know..the antibodies effect the TSH so it cant be trusted. Its not fair you doc wont test the FT4. When going by just the TSH you can only make an educated guess as to where you are at...Big Hugs...Kathy

Hi, I will say they that taking Omega-3 is what stopped my tearing and reduced the gritty feeling and morning dryness. I took 3000mg - 6000mg daily.

Hello
I'm new to this site. I have Graves Eye Disease and I'm currently seeing an ophthalmologist or my double vision and trouble focusing. For the last couple of years, off and on, I get solumedrol intravenously since my body just does not handle taking the steroids by mouth well. Side effects are horrible. The solumedrol tends to correct my vision temporarily. I have not seen an endocrinologist in over three years. My internal medicine doctor treats my hyper thyroid with levoxyl but she only does blood test for TSH. I could kick myself because I think I have needed more blood work in order for her to treat my hyper thyroid. I have lost weight, and I eat all the time, grouchy, rapid heartbeat, hair will not grow, shedding a lot, puffy eyes, watery eyes, gritty and sand paper feeling. My ophthalmologist just ordered labs for my thyroid...about 6 different ones. Thank God. I'm looking for an endocrinologist so that I can get better care. Does anyone have problems with their double vision and/or trouble focusing know if this is permanent damage? If my thyroid gets in shape, will that help with this all. I've had the eye symptoms before but recently this started 9/2014 with gradual different eye symptoms. I hope someone will share their experience and offer some advice on if I'm headed in the right direction or what I should do. BTW, I go back to ophthalmologist this week for f/u on blood work. Comments welcome.