Hi Islandgyal-

I am sorry that you are going through this. I will say this: being terrified is the WORST thing you can do. I am speaking from experience - I went through some health problems and uncertainty that started 3 years ago and it is the fear of the worst case scenario that kept me getting sicker and sicker and made my sx worse. Only after I pulled back from that and started doing yoga etc that I got better (then I got gastritis but that had been brewing for a while). So, though I haven't dealt with IM, my condition was similar in that there was a very unlikely worst case scenario that I freaked out about.
Can you take imodium? That saved my life, I think literally, when I had nonstop diarrhea, could not eat and lost 14 lbs in 2 months due to gut damage, I was dying. Imodium reversed all that.
Secondly, are you taking Zinc carnosine (I like the Swanson brand) and look into L-Glutamine as well. IM can be reversed and is very unlikely to cause cancer, especially when you treat it with natural supps like you are, from what I understand.
Finally, please take up yoga, mediation and relaxation on a daily basis, if you have not already. YOur mental attitude can cure this or make it worse. It is WHOLLY in your hands - I believe that 100%.

Best wishes,
Asli

Thanks for your feedback, Asli. Yes, I do use imodium occasionally. My dr has warned about avoiding stress. In fact stress is what escalated hpylori to IM. I'm now on zanax prescribed by my GP which I'd rather not take, but yoga is a thought for consideration thanks. I'll also look into those supplements you recommended. My #1 concern is to get this condition reversed and not have to face the alternative. Appreciate feedback from anyone who's experiencing or has beat this IM. Thanks.

I'm sorry you aren't feeling well. Firstly, were you prescribed triple therapy (antibiotics) to get rid of the Hpylori? How long has it been since your diagnosis of hypylori to where you are today? Secondly, how long have you been taking these supplements? I think the supplements are a good thing and are soothing but aren't doing much in the way of healing.

Pylori since June 2016... Triple antibiotics protocol. Endoscope and blood test this past March were negative for pylori but positive for IM (which I suspect was alreay there since last June). Multiple biopsies done this past March are negative for both so far. My gastro's only suggestion was nexium so I started seeing naturopath about 2 wks ago who prescribed supplements. Any other suggestions for healing and reversing this thing?

Wow, so it's been a year for you at this point. I was diagnosed with Hpylori in September 2016 and did the triple therapy, too. I wish I would have armed myself with a potent pribiotic. I may be wrong but I feel the antibiotics also do a number on the stomach and we seem to blame just the Hpylori. Late October I saw a GI doctor who put me on omeprazole. I took the omeprazole for two weeks or less and then did my own research and started taking a lot of the supplements you are now on. On Dec 1st I had an endoscopy which confirmed mild gastritis. I was duscsharged with orders to continue omeprazole (which I had already stopped taking unbeknownst to them). I had read side effects that I would rather not deal with. After research, I too, consulted with a naturapathic doctor who specializes exclusively with the digestive system with 35+ years of experience. He has me on a combination of two probiotocs, Colostrom, and Perm a Vite (gut lining powder I mix with juice). I've had very few bad days since then. Very few things are off limits these days. The only times I've felt discomfort, just recently, is with black tea or chocolate. The supplements you are taking are good but not on there own. How are you feeling on the supplents? Are you noticeably better?

Not quite yet. Some days better than others. Supplements help only minimally. I'm seeing naturopath on Fri for food allergy test results... specifically celiac since I can't tolerate yeast or wheat. She plans a specific course once we review those results. I may mention your probiotic combo. Trying to control those panic attacks (someone suggested yoga) that come over me when i think of this thing. So much I can't eat right now and the implications are scary.

Definately keep us updated on how your visit on Friday goes. I forgot to mention earlier, hold off on the Xanax, if you can. I agree that thinking about it can lead you to scary places. I have three daughters ages 15, 10, and 6....the thought that this could get worse was robbing me of my peace and sleep. It was crippling to picture their future without me in it, God forbid. If nothing else, this whole experience is teaching me to make wiser food choices, take my vitamins, and take better care of myself.

I have had stomach issues for 4 years, had all the test at the beginning & told I had an inflamed stomach. This year in January I had another gastroscopy & was finally diagnosed with chronic gastritis, HPylori & cell changes. Had the eradication therapy & my test came back negative. Still continued to have stomach pain & fatigue plus I kept getting infections such as tooth infection, cut infection & my latest was a cold that turned into ear, sinus & throat infection.
After seeking help from a nutritional practitioner I have now learned that I am low in B12 & vitamin D. I now take zinc, magnesium, B12 & vitamin D & starting to feel less fatigued each day.

I stopped taking all medications & will take Zantac only wen I need to.
I really think the HPylori has not gone because when I was on the antibiotic for my sinus infection last week my stomach issues eased considerably.

My advise is don't stop researching, keep trying different things & keep onto your doctors for continual blood test to check your levels. As I said I have been suffering with this stomach issue for 4 years & it will eventually run your body down.
I never lost weight either instead I gained 10 kilos & bloated up considerably.
Hope all goes well

I am bumping this old thread as I was recently diagnosed with IM. I have not seen the doctor to get his action plan but I am thinking he is just going to tell me to stay on protonix and change my diet (which I already dramatically have).

Some ER docs thought I had ulcerative colitis, I though I had crohn's, so I started taking supplements to see if they would work and they did.

I am taking marshmallow root (I was taking for interstitial cystitis but I can see above it's used for this, so exciting to hear), aloe vera gels, l glutamine (has helped tremendously), ginger and detox and green teas (want to get matcha green tea as powerful antioxidant I've read). I've also read vitamin C, anyone? I have bulk turmeric powder so I make "golden milk". Just bought some manuka honey, but I've read that sugar is the enemy, anyone?

What is DGL?? Someone else on here told me to get DaVinci product for the gut and it has really high doses of everything like licorice and l glutamine, to name a few. I am thinking that will be my one stop shop for everything it seems. If anyone has any other supplement OR diet recommendations, please let me know.

Reading about the stress part above has opened my eyes. I have enormous stress right now with work, financial stress, and chronic pain/fatigue from fibro and accidents. I know this is making it worse. So, it almost sounds like a prescription for yoga and meditation are a must. My wakeup call!