This is a large group, but posting is infrequent.
I worry that my blog-length post, where I'm basically talking myself into a healthier lifestyle, is clogging things up on this board - that many of you open the page, see that post at the top and think oh, nothing new happening here.
Just ignore my ranting and raving. I can't afford real therapy so I'm basically doing it myself. And doing it publicly keeps me accountable. But I hope to God I'm not discouraging anyone else from posting.
And, seriously, what I'm seeing in six months here is that people post once and then vanish. There will be a heartfelt :I have to make a change'; post, but very rarely any followup. Why? Let's talk about what we need, here, to make this our safe place, and make this a place where we can help each other out.
What do you need this page to be? What has stopped you from posting more?
I am new here and recently diagnosed with RA, I am on Methotrexate and folic acid with painkillers as needed. For the last few weeks I have been tired and in pain but because I am a " head in the sand", stoic kind of person I just kept going until my blood tests told on me! so tomorrow I will have a Kenacort injection . I am finding it hard to accept that I am unwell and need to advocate for...
Hello. Hoping to get some information from others more knowledgeable. Can you explain to me why rheumatologist do not want to leave you on prednisone long term because of side effects but will put us on biologics that have not been around very long and have a list of side effects. I am terrified to go on Simponi with the list of all it’s possible side effects? Thanks for any info