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Withdrawing from Savella

Bluesydeb
Bluesydeb
Has anyone else gone through this yet? I have to go off Savella because it caused my heart to beat way too fast. I'm having horrible headaches so far, and I've just cut my dose in half.

Please let me know if you've gone through withdrawal from Savella and how it was for you.

Thanks!

By the way, its really irking me that I had to go off of this drug. It was the first drug to help me. It took away a lot of my pain, helped me sleep much better, helped fibro fog big time and even made me more "regular".
I guess it's back to the drawing board.
deleted_user
deleted_user
Same here Blues. I tried it for 2 1/2 months. Told my rheumatologist today that I was tapering off of it due to irregular, rapid heart rate, hypertension ( I never took BP medicine before Savella). Also, my TSH was normal in Sep. As of this past Friday when I got results back, I am hyperthyroid! I''ve become irritable, agitated, hostile. He said " I don't think any of your symptoms are from Savella". Are you kidding me???? He's fired. He just doesn't know it yet. He should listen to side effects as reported and notify the manufacturer so they can tweak this high powered med.

One thing I noticed. I went from the evening dose of 50 mg down to 25 mg beginning last night and this morning, my pain was through the roof. That's what I'm dealing with right this minute. Good luck with your discontinuation.
deleted_user
deleted_user
Hi, new here. I'm in the process of going off savella. I won't even list the effects in starting this drug and how hard I worked to overcome them over about six months, but was not entirely successful. Side effects were scary, and I got them down, but some troublesome/scary ones remained. Will write more, but I'm following doctor's advice he gave me from the beginning - exercise, try to stay active, socialize, etc. plus more.

I have exercised every day for six months, now going to the Y and getting out of the house more, which helps my mood a great deal. I'm on week two, going from 75 mg/day to 50 mg/day and now 25 mg/day, then to 0 per day.

I have no idea what to expect; pain has gone up a bit at times, but it's still early to say what the final result will be, as I'm in the early stages of going off this. I have noticed some muscle stiffness and "here and there" pains, but I am trying to keep active, hoping to reduce effects of going off it, plus finding a new way to help pain without increasing pain meds. Heartbeat, tremors, anxiety, panic really scared me. I am also hypothyroid and glad2bee, thanks to your post, I will try to get my thyroid checked more often, as I've often suspected it doesn't stay steady.

So what I'm doing is everything my doctor suggests, along with things I have found on my own to help pain. Doctor has suggested I try the above I mentioned, so hoping to keep working on that, plus better diet, maybe some yoga, etc., and my faith. Hope this works and pain doesn't shoot sky-high again. PS: 50 mg at once would send me through the roof! Thanks, MK