Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I can barely walk anymore without much pain and weakness in my legs. Last fall I had peripheral edema for 3 months then it went away. I elevate my legs now as often as I can. Last summer I started using the scooters at the grocery store, man wow I didn't know I needed to so bad, what a relief. Now a couple times the scooters were all in use and I leaned on a basket and walked. Soon I needed to crawl through the store! My doc talks about muscle weakness from Spinal stenosis. I'm getting kind of scared from all the pain, weakness and all. I use a cane since last May. My balance and coordination are somewhat messed up too. I get Neuralgia and Sciatica flare ups in my legs but not often though when I do they last from 3 weeks to about 2 months. What is all this extra pain and weakness?? Fibro hurts but it never caused weakness. I am officially in a major flare up right now and the legs are the worst. I want to scream!!!
Any ideas? Thanks.
Sherry
Any ideas? Thanks.
Sherry
I am up again now and able to make it through the grocery store if I hurry. But doing it will put me down for a few days. I don't know how long this will last. I just take every good day and try to make the most of it.
It is so frustrating when I can't do what I need to do. I started doing most of my purchases online. That really helped a lot.
Sorry you are having a bad spell. Hopefully it is only temporary.
Hugs,
YDLS
IBM ( Inclusive Body Myositis) I know can cause muscle weakness that is more of a imflamation of muscles. PM (polymyositis) Thinking these probably were ruled out when being diagnosed with FM. But maybe could ask your doc.anyway.
I hope you feel much better tomorrow sending healing prayers..
take care gentle hugs
Pain, Heaviness, Weakness, Tingling, Hot/Cold Sensations...Burning Muscles...all of it can very well be Indicative of a Circulation Issue...One that IF Caught early can be Corrected thru Exercise, diet changes...
I appreciate your support and suggestions.
No more pain please!
Sherry
Our bodies were made to move. We must move for a ton of reasons and it's important - like eating or sleeping are important. When we don't move enough for a long time, we just start to rot and clog faster.
Do you have or can you get access to a pool - preferably with a therapist? Wouldn't that be just perfect? It's really a shame more insurance companies don't cover it. I would think it would help things heal faster.
Whatever you do, focus on what YOU can do rather than what you can't. Do anything you can for strength.
I have lower back issues and trouble standing for very long. When I can, I do the workout but when I'm flaring, no way - however, when I am flaring, I've found that at least lifting my arms up as high as I can (while sitting OR lying down) and readjusting my posture really takes an amazing amount of strain off my back.
I also lift my legs in different ways while sitting or lying - swing my shoulders or hips in time to the music - lift my cheeks to my eyes (really - this releases feel good stimulants - try it now.)
I also got an inversion table about 3 years ago, used it daily - religiously for 3 months and my 20 years of supreme back issues more or less went away. Like friggin' magic.
If you're walking around on compressed nerves, it's going to hurt no matter what. Think decompression.
I may have overdone it because now I think I have some kind of compression on the other end, in my brain, or something... and haven't been able to use it for over a year - Sheesh! But maybe I wasn't breathing properly.
It's always something, eh?
I think if you get that circulation test done, that would be a good start. I wonder if by having leg edema it caused serious nerve damage as the fluids are pressing on your tissues for so long. Additional testing sounds like a great idea if you are able to.
Exercise and massage sound like a plan too if you have a hand held massager. We dont ever go wrong with working out....and water work outs would be much less drama on your body as the water gives so much support to our bodies.
Sherry