Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Please, see a second rheumy, and see a neuro. To rule out MS completely. There are many forms of MS out there, and if you do have that, the sooner you know, the sooner you can start treatment.
Also, Spinal tap is a good idea b/c it can rule out more than MS. It can rule out all kinds of infections, even cancers, and other abnormalities. They suck, but they can show things MRI or bloodwork can miss.
Sorry to lecture, I know this is terrifying as he**, I live(d) it.
Whatever your decision, soft purrs of healing to you...
Let us know what you decide Jen.
Leo, have you had a spinal tap?
Mine was clean as a whistle. But it did rule out a lot, so that was good.