Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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lasers 05/03/2016

do many with fibromyalgia suffer from this..over the years i have had it real bad at times to the point of vomiting and not been able to eat anything..my doctor said its from high b/p...thats new to me..is it only the low b/p that can do this..i had one two weeks ago at the shops carpark
ground spins and moves...tried to walk myself out of it..but fell face first into the ground..face a little messed up..the ambos came and fixed me up..had to go to the hospital the b/p was 200/125..i am sure one day all this illness is going to take me out..anyone know if this could be all linked to this illness....thanks

Bobbii 05/03/2016

I suffer from dizziness. My BP is ok. Just another one of the side effects. Stairs mess with my head. Anything like a busy carpet or wall pattern too. You may need to consider a cane to keep you steady. I'm resisting because I'm far too young. But I'm also going to sit down wherever I am if I need to. Continue to pursue answers because it could be something else. Why is your BP high?

lasers 05/03/2016

hi bobbii..i dont know why its high..on pills now..but the dizzys are not made by any movement..my head can be so still and it will come on..no warnings and its fast..all us 3 kids suffer from fibro..so i guess its a gene thing...i can not lay the blame on the inner ear..its fine by a hearing test...doctors dont seen to care..just get that silly look...been waiting to see a rheumatologist since last june at the hospital..rang them the other day and i will be seen sometime in the new year...great system we have....cheers

bluesun 05/03/2016

Aloha.

I have the same issues. Busy carpets, stairs, etc. But movements do it to me, too. When driving a winding road, riding an elevator, etc. Sometimes I'll just be walking to the bathroom and it will hit me out of nowhere. The hardest thing for me is when I'm swimming at the beach and I get dizzy, which happens more often than I'd like.

I also lose my balance a lot. Just walking along and then like someone suddenly pushed me. I've told this to the doctors over and over but they just give a puzzled look and move on, even though I'm covered in bruises. If doctors don't know the answer, seems like hitting the ignore button is the common solution for them! So frustrating!

lasers 05/03/2016

hi bluesun..i do lose balance at times..been doing a little reading and i just wonder if it could be vestibular neuritis/labyrinthitis...the reason i say this..the left ear is very deaf..if i press my finger to close off the right ear i can not hear anything not even a loud t.v...i was reading that can make you deaf in one ear...maybe i read to much..but doctors are hopeless..i try and not go to mine now...sick of the funny looks..got to find a new one and start all over again..cheers from oz

fibrolizzy 05/04/2016

Lasers, I'm so sorry you're going through this. I, too, suffer with dizziness and vertigo at times. Just having a hearing test won't be able to determine what's going on with your ears. I went through a series of tests (all in one day) to detect any problems with my inner ear. My ENT diagnosed me with meniers disease. I think it's fairly common with fibro and also autoimmune diseases.

I also have ankylosing spondylitis, an AI disease, and I've noticed when I flare, and inflammation is higher, I have the dizzies. I know how awful and frustrating it is. I'd follow up in the BP issue though, since yours was found to be high.

I pray you get some answers soon.

lasers 05/04/2016

thanks fibrodizzy...i do need to be sorted..dont think i can keep living like this..since i smashed my face each day getting big headaches on the side of head that i hit and big pain behind the eye...but on the day a ct scan was done so i dont know what is wrong..one thing i hate of all this is c.f...with me 24/7..was always active..now its all gone

fibrohyg 05/05/2016

Hi-I'm fibrohyg-the same thing happened to me in 12-10-15-I was making lunch, and the right side of my head exploded like fireworks, and I passed out after spinning-I tried to catch myself-fell flat on my back and neck-broke 8 ribs, c7, sprained wrist broke scapula, and ankle. ER said BP was 239/139-being treated for this now. I never experienced this before-I lost my job of 24 years over this.Concussion symptoms of headache, balance issues, spacey, oversleeping. Hope this helps. I was shocked to see this post, as I have been living trough the effects of my fall too. Good luck to you in healing. Fibrohyg

lasers 05/06/2016

wow..that was a big fall..doc told me today i have face fractures..thats why after 2 weeks the halfside headaches and the nose is still sore...note to self..you dont bounce off cement...the spins hit fast..no warnings off them..i fear myself when driving...luck will run out one day....hope you are on the mend fibrohyg

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