I also have a variety of different pain. When I get real tired, I feel like I have the flu. Also, I have pain in the muscles of my hands and feet that ache. I also have aches in other parts of my body too, but those really hurt. So I agree, there are different pains and it's not always the same pain. I've also had tests and they all come back good. It would be good if we had something that medicine could fix. It is an evil disease.

Susan

What you are experiencing is very common with this syndrome (it is not a disease). Because it is so variable in terms of pain and other symptoms, FMS is very tough to manage and live with.

Pain that moves around, varies in intensity and feeling flu like or bruised are all part of it. Today, I feel like a I have a mild case of the flu coupled with being extremely tired. Yesterday was the day from hell with a lot of high intensity pain and stiffness. No matter what, I always try to keep moving to some degree. Sitting around or staying in bed seems to make things worse.

If you don't have a copy of "Fibromyalgia for Dummies", I highly recommend it. You can purchase this book on Amazon. It will give you a comprehensive overview of this complex illness and a lot of ways to manage it. Knowledge is power. Take care.

I think one day they will find that it's a disease and hopefully sooner than later. I hate when it's called a syndrome even if it's true. A syndrome seems to imply that it's a psychosomatic disorder.

I remember shortly after I was diagnosed my doctor quit and when I started getting IBS symptoms I had to go to the new doctor. I'll never forget him telling me "IBS is just a syndrome like Fibromyalgia". He obviously thought I was a hypochondriac and made a note in my chart to that affect. Ever since then I despise the term "syndrome".

Yes, the pain comes in all kinds of ways, muscle pains and aches, headaches, jaw aches, back aches, pins and needles, sometimes it feels like your skin is on fire. It feels like someone has a voodoo doll of me and is sticking pins in me.

Very unpleasant and hard to manage when it moves around to different parts of the body.

Yes, unfortunately, there are lots of different pains that go along with fibro.

Headaches are very common....there are painful tender points all over our bodies....we often have trigger points, or painful knots in muscles that when pressed, radiate pain to other areas. Then there are the general muscle aches and pains. And the flu-like symptoms, and bone-crushing fatigue.

It is a very difficult illness to deal with. Sending you big HUGS!

I too have a variety of pain. I guess that's just how it goes. It seems the more stressed I am than the more pain I have. Hang in there and know you aren't alone in your suffering.

I Remember Back When "PAIN" First Started In My Life.
It Felt Very Threatening.

One Day It Would Be In One Place, May Stay a few days, Then It Would Be Somewhere Else Entirely.

I RAN To Many Dr.s

No Wonder They Thought I Was "Seeking" Or A "Hypochondriac".

It Was Never Anything They Could Find "Reason For".

Getting Diagnosed With FM Was NOT Good For Me.

Once It Was On My medical Record, I Found That Every Other Dr. Dismissed Me and My LONG List Of Symptoms Easily. Brushing Me Off.

This In Turn, Damn Near Killed Me 3 Times. Because In My List Of Diagnosis Is "FIBROMYALGIA"

*They Blew Off My Diverticulitis Bouts, When Finally I had The Surgery They Found Serious Issues, That Could Have Easily Killed Me.

*In 2009 My Abdominal Aorta Was Closed Off By Scar Tissue. I Had To Go To A Completely DIFFERENT Dr. Gave NO medical History, Only Direct Symptoms Related To What I KNEW Was Happening. It Was Then Treated Correctly.

*In 2012 ~ I Went to The ER Not Feeling "RIGHT". He Blew me Off.Told Me I Was Anxious, Dehydrated. Sent Me Home. I Went Back Up The Next Day Very Off. They said They Would Recheck My Electrlyte #s Against The day Before, that IF There WAS An Issue That They Would Contact Me WITHIN A Half Hour.
I Did NOT Even get To SEE a Dr. That time, They Literally ROLLED Their Eyes, Handed Me a Cup From The FRONT Desk To PEE In.

Over 4 Hours LATER They Called, Told me To Get INTO My Car, Head To Mayo Clinic. END STAGE Renal Failure. Kidney Function At 7 Percent.

I Live 12 Hour Drive From Mayo..I Would have NEVER Made It. Mayo Called This Hospital, Told Them To have Me Medi Flighted Down.

Having the FM Diagnosis Has NOT Been a Blessing To Me. It Got Me Continuously IGNORED. Damn Near Killed.

Wrapping Your Head around It Is Almost Impossible.

My BEST Advise to You ?
Any New, Or Worsening Old Symptom Should Take you Directly To The Dr. Keep a Written Record Of Your Health. Keep Updated Copies Of Your Health Record.

I Think Of My Dr.s Now As MY Employees. They Work for Me, I Pay Them VERY Well, And If They are Sloughing Off, or Not Doing A Good Enough Job, I FIRE Them. To Their FACES. "YOU ARE FIRED". I Have No More Time For Lazy Ass, Arrogant Dr.s.

Yes, I also have a wide variety of pain, symptoms and conditions.

I have a team of Doctors working for me: 2 internists, pain management Doc, OB/Gyn, Orthopaedic, Physical Therapist, Psychologist, Neurologist, Gastro Doc, Dermatologist, and Oncologist. In December, I will see a rheumatologist.
They all know about each other!!

And, yes, I have also fired Doctors for various reasons. I have no problem seeking second opinions, either.

Hi Everyone!
I Literally feel your pain. I too have a weird variety of pain... I have spasms on both sides of my neck. The pain doesn't stop there... it travels down both of my shoulders like little shocks and then it feels like a huge man is grabbing me with both hands and squeezing all of my upper body muscles. Most of my pain shoots down my dominant right arm and some days I find it difficult to hold a pen or type. I have seen two doctors so far and am on the way to see the third. All of my MRI results have come back with "mild" tendinitis and in the case of my neck MRI was normal. It is horrible and sometimes I cry for no reason. I am starting to develop some bruises in weird places so I am not sure if that is the medication or not. I feel the same way you all do about Doctors... mostly they suck! Because I am only 25 years old I am discriminated against. I get the "drug seeker look" and it makes me feel 50 times more horrible asking for help. I had a breast reduction at 18 years old and did not take pain medication for it (just wanted you all to know that I never really took meds before the Fibro started). I feel like doctors have lost their sympathy and the value of care when speaking to someone about this mean mean syndrome/disease/whateveritis! I feel as if I cannot do anything anymore and when I held my niece for the first time my upper body started to shake and when I gave her back to my sister my right hand kept shaking so badly that I could not eat the rest of my dinner or drink a glass of wine. All I want is help and the doctors look at my like I am crazy... Am I nuts?