Dana~ I am on Topamax for chronic headaches and have been for 6 months now. I am sorry to say the tingling does not stop for good. It does lessen after awhile.
There are things you can do to lessen it. Extra potassium in your system is one. You can take it as a supplement as in a Vitamin.
Also, people have recommended Coconut water. At first, the taste gets a little taking used to, but you can mix it with another type of juice to help with the taste. I like to put it into smoothies with berries in the morning. Yum!

How much of a dose are you on to help with your flares?
Wish you well!

I am only on 25mg which I then had to cut in half to see if it helped the tingling. Then the pain started to come back though so I have to go up again! I've heard about Potassium as a "helper." What dose do you take?

Thanks for the input!

I'm interested in following this discussion, because I tried topamax, but had to discontinue because it made me feel so loopy and out of it. DId either of you have that at the beginning, and did it go away?

I don't have migraines, but my pain doc had me try it for fibro pain. I didn't really give it longer than about a week because of the side effect.

THanks!

I am on 200mg, 100 in am and 100 at night. My neurologist started me at 25 and we slowly increased it weekly. I will be going to see him again in a few weeks and we will probably be upping it again to 300mg, maybe 400mg.
The loopy feeling, gets better. Or you just get used to it I suppose. I never really had big problem with it. Then again, I don't work, so I don't have a task that makes me have to concentrate so much to focus. So I am not sure if that makes a difference.
Hope you are all having a good Sunday afternoon!

Apparently, the loopy feeling is quite normal. I'm on a very low dose and I still experience it. It takes a little while for Topamax to reach peak levels in the system, so a week might not have been long enough.

Just checking in to see how you're doing a few days later. I'm still on the 200 mg. I see the doc at the end of the month and we'll most likely bump it up again as we have every time I go to see him.
Hope you are doing alright :)
I go on vacation a week from yesterday, headed to see my mom in New Brunswick, Canada! Excited about that, but not excited about driving for 12 hours....

Thanks so much for checking in, Altoanya! I started a Potassium supplement and I actually find it DOES help. I am not experiencing the same degree of tingling and numbness that made me discontinue the Topamax at this dosage last time I tried it. I think I can actually stay on it!

Have a wonderful time on your trip!

Altoanya,

Thanks for the added suggestion to take potassium, and coconut water along with topamax............I never heard to do that until now. I take 100mg along with Cymbalta which is 90mg.

I take 100 MGs of Topamax for migraines, I used to take 200 mgs but that made my feet tigle like when they wake up after falling asleep, really annoying. After cutting back to 100 I was fine, seemed to last a short time, I'd say the tingling subsided after a month or so

Thanks, MoonieG. My second attempt at Topamax has not been as bad as the first (especially since I'm splitting the dose between morning and evening now).

Hey,
I just started getting burning/ tingling souls of feet, and palms of hands, after being on 25 mg of Topamax x2 daily.for a little over a year...wondering if because of such a great time lag if these new symptoms, might just be yet more Fibro symptoms...

hi ive been on topomax for 8 yrs now and the tingling comes and goes every now and then . but i find that it benifits out way it so it live it the little bit of tinglings. you also notice loss of appettie too that is normal, and it is a mood stablizer , i like it and it has worker well for me. if i can answer any other things write me.