Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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sparklyavf 07/22/2009

Tempero-mandibular joint pain aka my face hurts so much, my pillow feels like a rock when I lay on it cos my face hurts so bad.

Valium seems to be the only thing that helps when TMJ flares up, but I have tried baclofen (Lioresal).. and orphenadrine (Norflex) and neither of these seem to do the trick.... I end up only getting 9 days of relief a month because of the restrictions on how much valium a person can have prescribed here in Australia.

Anyone have any suggestions? Its driving me CRAAZZZZYYY at the moment! seriously!.... LOL even someone to moan with me about it would be nice.

Gentle Hugs... and a soft cloud to sleep on...

Coralie XXX

deleted_user 07/22/2009

I have bad jaw pain too. Here is a link to another discussion on jaw and gum pain.

Hope you find something that works for you soon.

http://www.dailystrength.org/c/Fibromyalgia/forum/7544468-jaw-gum-painvalium

hugs

sparklyavf 07/22/2009

lol.. Maryca ....yeah I saw that post about 2 minutes after I posted mine... oh well... was just peeved and wanted to vent/get some help.. the manual jaw stretching seems promising... going to try that a few times a day

Coralie XXX

deleted_user 07/22/2009

I do that alot LOL. I also found if you click on view more post and type in what your looking for under search it will bring up all the discussions on that topic.

Hugs

deleted_user 07/22/2009

there is also a TMJ group here on DS.

Here is a link to that group.

http://www.dailystrength.org/c/TMJ/support-group

deleted_user 07/22/2009

Did you have sleeping problems with the Baclofen? My neurologist prescribed this but I was unable to sleep a wink. He said this was a med I couldn't suddenly stop because it could cause seizure so it turned out to be just another expensive med that is added to the box of unused.

I have weeks when my TMJ is really bad. Then it will go away and I won't have a problem for another month. I guess that is like most of our FM pain. It comes and goes (sometimes it stays), and it move around.

Wonderbaby 07/22/2009

Please forgive me hun if this is a dumb question, but I was taught that with TMJ, it's about being preventative.
Meaning, do you wear a mouth guard? Do you do the warm packs when you feel your jaw tightening up.

But I agree, when things get bad....they are "really really" bad. I get locked up where I can't open my mouth for weeks on end.

I'm a clincher. So I do what I can. The mouth guard helps.

deleted_user 07/22/2009

I am not sure if this will help, but I have just discover the MIRACLE of memory foam. I got a pillow and it is heaven. They are kind of expensive, mine was $25 at Kohl's.

Do you think this would help you?

I have a lot of headaches plus neck and shoulder pain from the Fibro. I am really hoping this helps me....so far so good!

Heather

deleted_user 07/22/2009

yes on the pillows. Try all different kinds and as many as you can afford. If you can find the right kind of combination it can make a world of difference.

deleted_user 07/22/2009

Form all I can find help with is my feather pillow. The mouth guard really helps and for me breathing and relaxation tapes where helpful. oan away its not a nice thing to have, hugs

deleted_user 07/22/2009

same subject please read my post 19-20
i suffer w/ TMJ every day & have to wear splint @ night it also has trained me to not let my teeth touch ea other or to grind teeth
do the exercise in post 19-20

http://www.dailystrength.org/c/Fibromyalgia/forum/7544468-jaw-gum-painvalium

deleted_user 07/22/2009

Unfortunately the teeth guard/splint is not helpful for everyone. I've tried more than one kind and either chewed thru it, choked on it, or it added to my insomnia problems.

deleted_user 07/23/2009

sorry for you pain! yes I have that problem also...it's hard to get comfortable! I see a chiropractor that adjusts with a pro-adjuster. I find that he is the only one who can set it right..it gentle and doesn't hurt. it just gets a little sore for a few days because its back in place. hugzzzz

redsilverfox 07/23/2009

My foam specially shape neck pillow and use Flexeril better than Baclophen for me and use hot or cold soft gel packs and a soft cloth tea towel or soft piece of flannel or soft towel to wrap hot or cold gel packs in Also ask a Health food store or go to a pain clinic or Dentist can help with this And do not chew gum it may make it worse and talking too much, too!

PeaceN2You 07/23/2009

I have one of those "neck roll" pillows and that actually helps to keep my head positioned correctly, which helps with the position of my jaw and keeps me comfortable. I don't think I have TMJ but my dentist says I do grind my teeth sometimes, and before I got my bite corrected, I had a lot of problems with my TM joint - it actually spontaneously dislocated twice, as it was under so much pressure from crowded teeth and a nasty crossbite.

When I first got my braces (at age 35) I had to be very careful to sleep on that side to keep pressure on the jaw, because under the pressure of the wires, the muscle would go into spasm and try to put the jaw out. I don't envy anyone who deals with that - I still have a few occasional problems but it was hellish when it was full-blown TMJ.

CarrieinSK 07/23/2009

I have a full memory foam pillow and that seems to help with shoulder and face pain. It has a satin cover on the top and a breathable mesh on the back.

I posted a few helpful things to try on TMJ on one of the posts probably mentioned here..regarding a hockey mouth guard. Hope you get some relief.

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