Hey, fibrowife. Welcome!

I have endo but can't get a hysterectomy (argh),. What medss are you taking, if I may ask? We tend to fall into "subcategories" of whatt works --- and we have to be sure we're accurately diagnosed. A lot of fatigue can come with Lyme, and spinal Arthritis may be having an impact on nerves (IIRC). So first thing is to push the docs to make sure htey're sure you have fibro! The symptoms overlap a lot of other things.

We usually recommend the book "Fibro for Dummies". Helps us, and our loved ones.

For now? Hydrate, nutrition, and remember: You wake up feeling like people do after they *finish* a marathon or triathlon. As in: Totally flat, spent, achy, ouch, urgh, fall-down worn out.

Healing hopes to you:-)

Welcome. I've been dealing with a lot of pain lately and it would be so easy to just want to lay and not do anything, but that's when you really need to be moving. I work but they do have a gym here and I'm able to ride the bike on my lunch hours. I have arthritis in my knees so it's low impact and easy on my knees, but keeps my leg muscles strong. I also walk my dog. If you can at least walk a little way and build up to walking longer, maybe that would help you feel better and give you more energy. I hope you find something that works for you.

Susan

Hi fibrowife, welcome! I am 65 and have had this junk since I was dx @ 48. This post is the place to vent. Very few are luck enough to have someone close that knows just how it feels to be us. I just lost my daughter to this damn stuff. She just can't stand or understand what the heck I go thu. She recently told me to take a pill and suck it up. Sigh..

Hi fibrowife, I am 68 and had FM since teen years. I have tried everything over all these years. Here are some things that work for me. First of all, I was scared off Chiropractic by MDs for decades but recently teamed up with (my first one) a really good one after much research (there are good and not so good doctors of all kinds). He/she should be able to help with your spinal arthritis. He is helping me with peripheral neuropathy (I also have diabetes) when no other doctor had anything. There is good treatment for Lyme Disease, so seek it out! For FM I highly recommend the small doses of the drug Naltrexone, an older generic med now being successful in treating MS, Crones, and FM. Must be made up at a compounding pharmacy, cost $45/month, not covered by my ins. Start with 1.5 mg for one month, the 3.0 mg for one month, then 4.5 mg maintenance dose. I realized improvement about two weeks after starting on the 3.0 dose and continued improvement is supposed to last 12 to 18 months. It has really helped me a lot when other drugs just had too many side effects. Give it a try. Good luck, keep moderate activity in your life and keep searching for what helps for you.

Swimming is wonderful, esp for arthritis. Sometimes meds need to be tried or tweaked. I don't know how much of this you've done. What works varies person to person. I've tried quite a few. Ugh. Welcome and best wishes :)

Work up to doing things. Start with little increments so you don't get the "post exertional malaise" effect common. Start with even 10 minutes of walking. Do it when it's not hot, but comfortable. I take emergen-c sometimes twice a day but when I have protein supplement, once a day. We are low on Vitamin D and B12 usually the most and that's where some energy comes from but we have to overcompensate more than the usual person.
I am struggling with this greatly right now but looking into anemia for me because of low red blood cell and hemoglobin counts. I also had endo with a full hysterectomy, spondylosis in my neck and now low back, fibro, of course and a heart problem, but I am 50 yo.
Something a massage therapist told me once, "Listen to your body, give it what it needs". I try, believe me I "try"!!

Good luck to you and wishing you more energy!
xoxo, JPTexas

oh, one more thing if someone hasn't already addressed....pain makes you really tired, so you need to get pain down to a manageable level like even a 3 or 5, if possible. I am constantly playing with the meds I've been prescribed over the years to find an equilibrium for my body. I am on tylenol arthritis strength, 2 x day, gabapentin 2-3 x day, tizanidine (that's heavy duty arsenal, lol) as needed when in extreme spasm and right now due having to travel and drive out of town for a specialist, oxycodone for my cervical radiculopathy and unhealed shoulder and rib injuries (due to a serious fall).