Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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debbied1009 08/27/2008

I am hoping that you guys might be able to make suggestions for CFS. I have been stretching and walking a lot to get my legs stronger, and that is working. I'm actually starting to get muscle tone in my legs that I thought only a few years ago were going to start asking for a cane to help them walk. LOL But my problem is that I am still exhausted all the time. I get out of bed exhausted and ready for a nap. Recently, hubby and I started a big job on the house, and it has me so exhausted I can hardly type this. I keep back spacing to correct what I'm writing. LOL I started taking 500mg of B12 along with my Mult Vit., but it is not enough. This job that hubby and I are doing is going to take weeks, so I really need some help. My brain is so foggy that I'm doing stupid tthings like last nite, picking up a red hot stove grate to clean it and messed my hand up. Recently I did something with a can lid, and ended up with stitches in same hand. Now I'm using power tools. I'm getting worried that I might accidentaly lose a finger to the power circular saw. Please, does anyone know what can help the brain fog and my poor tired body???

deleted_user 08/27/2008

I don't know what to say except I know what you mean. I can't wait until someone gives you some advice. It seems that everything I take for the Fibromonster makes me tired. So I sympathize with you. May your days go better for you as they go by. Take Care of yourself Debbie. Your Fellow Fibromite, Sandy or snowdays

deleted_user 08/27/2008

I am so sorry that you are tired and foggy. I'm not sure what advise that I can give either. I've been in a flare myself. I am feeling better today, better than I have in a week or so. Maybe you will feel better soon. I've been hurting myself too, walking into things, stubbing my toes....

Just try to rest, I know it's hard, but sometimes you have to take care of you.

Hugs, Lacey

deleted_user 08/27/2008

I wish I knew what to tell you. I have the same problem and nothing seems to work. i try taking vitamins, B vitamins, naps, caffeine and nothing seems to work. My doctor finally sent me for a sleep study and I just found out that I have obstructive sleep apnea on top of everything else. I don't stop breathing completely but my oxygen level goes down to 87% when I sleep so I now I have to get a cpap machine to sleep with. The doctor seems to think that my sleep will improve once I get it and I hope she is right but there are so many disappointments with fibro and I have been disappointed so many times that I am trying not to get my hopes up. But if you haven't done a sleep study yet then you should do one just to make sure..

debbied1009 08/27/2008

Thanks for the feedback everyone. Snow, I listened to you today and took it easy.Lacey, I hope your flare is now done. And Witedove, yes I did a sleep clinic years ago. My sleep is fine, but they let me take my sleeping RX the nite I did it. Hubby is the one with severe sleep apenea. I have to wear ear plugs every nite. He also swings in his sleep. I actually have gotten kicked and punched in my sleep by him. He is a really good guy so he is worth it. I also do the B vits., caffeine,and naps. The naps seem to make me feel even more tired! LOL

deleted_user 08/27/2008

dear debbie,

I recently started taking a liquid vitamin/supplement drink from a company called "Vemma". I have only been taking it for about two weeks, but I have noticed that it has improved my concentration, and has lifted my mood and motivated me to get things done around the house . . . it contains all the vitamins and minerals that our body needs, from plant-based extracts. So unlike vitamin pills, it is immediately absorbed into the bloodstream, and does not have to be "digested." It also contains an energy blend of mangosteen, organic aloe vera, and organic green tea. Let me know if you ae interested and I can give you more info. I hope this was helpful!

P.S. be careful with those power tools :)

deleted_user 08/27/2008

I have this Little machine...called an Exerciser 2000...Google it..

My Husband bought it to help with my Leg Pain...Just when I was about to give up on it working I noticed that I was No Longer taking the 5 hour "Power Naps" everyday...

this Machine is Similiar to a Chi machine...but has More settings..and bigger ankle space..

it works simply by shakeing ur legs back and forth...as you lie down comfortably...it Kicks starts Not only the Circulatory system...BUT Also the Lymphatic System...

I Know it was the machine that helped me fight off that awful Fatigue because I quit useing it when we were doing some remodeling...and within 2-3 weeks the fatigue HIT hard again...so we dug out my little machine...and within a week the Fatigue once again Disappeared...

also getting Massages that help to Stimulate ur Lymphatic System...I get these done as well...makeing sure While doing either the Exercise machine...OR the Massages that you drink ALOT of water !!

GL to You this Day !!

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