Fibromyalgia Support Group

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scared and wanting feedback

alonensidemyhead
alonensidemyhead
i have crappy county insurance so i have three months in between dr visits, i just got a regular dr about 6 months ago and it feels like the slowest "progress" ever. I have many problems but lately I have been having severe tingling in my chest and some numbness. It's scary as hell. I have tingling and pins and needles really bad in my hands and feet a lot, a lot of times it happens just from position, like laying on my arm or leaning down for two seconds, it happens really fast. is progressed over the years since i was about 16 and has gotten worse, im 25 now. this chest stuff in new. ive had discomfort in my rib cages over the years like tender points but this is different i dont know exactly how to describe it. right now it is causing some anxiety because i always fear it is multiple sclerosis and they are not checking for it while damage is happening. i was told at the ENT that I had menieres disease recently, well it wasnt 100% but anyways they said to get a head MRI to cancel out anything else. I also had my orthopedist tell me I needed a head MRI last year but no one ever ordered this. My appt is not until May 7th and frankly I am freaking out. Ive been having a hard time breathing the last week and I am thinking it could be my atenolol, but then the tingling and numbness in my chest is scaring me making me wonder what is going on. Not sure if I should go to the hospital, the walk in clinic, or where to go as I feel like no one cares and especially disregards me the instant they know I have fibromyalgia. But fibro isnt supposed to be progressive right? this has been nothing but progressive since the start, especially the last two years. im just scared and this struggle feels endless and like I cant even count the new symptoms and problems Ive had added the last 2 years let alone the last few months. Does anyone else has symptoms like these with fibromyalgia? i have a friend who has it as well but she doesnt get tingling and pins and needles at all. BTW dont know if this matters but the tingling gets stronger in my chest with i like hum or sing, even the slightest when i talk. i also get tingling/slight pins and needles in my face like my nose and eyes area. any feedback would help, just tired of feeling alone and dont know about going to the er as i dont feel like waiting for hours then laying in a bed for hours just to be sent home you know.
mynameisD
mynameisD
Hello,

This is a tough situation you are in.

Bearing in mind that I am not a doctor, in my opinion, you should go to the ER the next time you have tingling in your face, or trouble breathing.

Although you may have Costochondritis, or ms, or menieres, or any number of things, it could also be circulation problems, clots, signs of stroke, or nothing.

In my opinion, if you can not get to see your doctor until may 7, this is serious enough to go to the ER.
deleted_user
deleted_user
dear aloneinsidemy head,
HEY, i wrote you last night, but it must not have went through I feel for you and I'm praying that today is a better day. the things you said your going through does sound scary, I've had the burning and tingling in my legs and feet but not in my face, I hope you do get to a dr. soon, and I'LL pray that you find a good one that pays attention to what your saying instead of looking at you and deciding the problem before you even speak (oh yeah, I want one of them,too lol :) but seriously I really hope today is a better day for you! sending lots of hugs
deleted_user
deleted_user
If you are in doubt, go to the ER. Better safe than sorry.
DreamWishes
DreamWishes
Go to the ER just to be safe.Yes numbness and tingling occuring anywhere can accompany fibro and so can the troubled breathing.At least if you get checked out at hopefully a decent hospital,they can rule out all things immediately life threatening.And it will make you feel better just to know something,even if it's nothing.I wouldn't mention fibro to the ER.
SpaceGirl63
SpaceGirl63
Recently I have been getting pain around my rib cage/chest area, to the point that I can't wear a bra at all. Found out I had a rib out place from a fall a week ago.

If you see a chiropractor, tell them of your symptoms. My chiropractor helps more than any other so called "doctors"

{{{HUGZ}}}
deleted_user
deleted_user
Im with mynameisD, I'd go the ER or something next time this occurs, it doesn't sound like a fibro thing to me. But just like D I'm no dr. I've had numbness and swelling in my legs and back, but no pins and needles associated with it. The pins and needles suggest to me that it's perhaps soemthing else other than fm, could even be cardiovascular. Not to scare you but ya, I'd be going to the ER hun, you can never be too careful with stuff like this.

When it comes to Dr.s, I have endometriosis too, so I've been dealing with just about every kind of doctor you can generally think of. The one thing to keep in mind, if i may be so bold to offer my opinion lol, they work for you! Sometimes insistance gets you no where, but more often than not, stand your ground insist that tests be done to find out if you have things like MS. Insist the MRI is done, I've had to call Dr.s several times. I think my point is, if you become a big enough pain in their ass, they will do it just to get you off their backs lol.

Hope you find the answers and the comfort you need.

Take Care
B
stranded
stranded
I have pins and needles in my hands and feet. I have had pain in my rib from extreme anxiety. Also I do have tingling in other places and have what you call pain in the chest and pressure. I believe I am not sure I have felt what you have exactly. I would in my opinon go to the ER if it happens again. Are you not covered for this. Is this why you are not going? Do you have any problems with severe anxiety. I not telling you what it is because I am not a doctor. I think that if you feel this way again you should get an EKG and be in a hospital setting to figure out what's going on. Are you working, trying to get disablity, looking for work. I am sure there has to be some way to pay this if it isn't covered and really you are worth more than just not doing anything and something bad happening. I will be praying for you. I know fibo is not progressive but frankly mine seems to have gotten worse over the years. I am talking for myself. I have also had a lot of side effects and different illness pop up. I have senstivites to noise, light, some foods, dizziness and vertigo, tingling in hands and feet, more pain in more places. Myofacial which is very bad knots in my neck. It is excursitating to try to rub them out. My memory well my short term is that great and I lose alot of things. So many more. One doctor said about my tingly that I probably have a neropathy. I don't know what that is but I need to look it up.