Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I used to have IBS, but since taking pain meds, my problem is constipation. I don't remember having a problem with cold sores, but I do have chronic gastritis. Hmm....
Now AS SOON AS HE FEELS HIS LIPS TINGLING he takes 4 acidophilus tablets. Then he takes 4 tablets every four hours for about three days. Yes, that's 16 or 20 tablets a day for three days.
The cold sores never come out if he catches them as soon as he feels the tingling...before the sores appear.
I advised him to take acidophilus every day...but he won't listen to me about that for some strange reason. I do think if he took acidophius each day, the lesions wouldn't appear. I'm not positive but it makes sense to me.
The ongoing research into cytokines is more interesting.
I always say any research is good research. Even if they don't find what they're looking for they learn things that might prove to be valuable later.
My daughter doesn't have fibro, but started having IBS symptoms after having something flu-like last summer.
This is exciting research! Hope it works out for the good of us all.
http://research.ua.edu/2012/08/going-viral-surgeon-professor-team-in-new-approach-to-pain-treatment/
What I want to know is where are the 10 sites where they will be testing this treatment because 90 percent effective is UNHEARD OF in medicine. LOL With odds like that, I will move.
Not to get carried away. Every new research finding is MAJOR and then when they test it carefully, it 's nowhere as good. But still...One can hope
I'm kinda sick of being a "market."
Fibrosucks, like you, it runs in my family. It can be both. In other words, it can attack or leave damaged people who are susceptible and not others. Maybe most people are naturally immune and we aren't.
Many privately-funded studies have gotten people all excited with big promises of imminent breakthroughs. To my knowledge, not a single one of them has turned out to be anything but a money-maker for the sponsoring organization.
There are other issues with grants, but that's a different conversation. Again, I'm sick of bring somebody's "market" or "projected market share."
Non-related/related concurrent issue - it used to be that nothing got published until it was peer-reviewed, which meant it had been replicated and found to be scientifically valid. With the advent of the internet, you or I can publish and say we have something awesome, write a great-sounding business proposal, get investors, and make a lot of money. In the process a lot of sick people get their hopes up only to be disappointed, over and over again.
I've just learned not to get excited until it's "real" - not just somebody's great-sounding business plan.
Maybe I am more optimistic than you because I probably haven't had fibro as long as you. Haven't been burned much. Actually, I am optimistic because through a lot of agency, reading, listening, and trying out various things, I am ALMOST normal. Each of my management strategies helps one thing or another until it adds up to pretty good.
Ballmarc and Triad. I will look into this. Are either of you professionally into the physical sciences? There have got to be physicians, biologist, chemists, etc. out there with fibro. What do they do? What research are they following?
On a side note, I did test positive for a virus related to mono. My dr. said it is only active in people with a weakened immune system.
While, I haven't read the article yet, I am glad to know that research continues.