Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I've been diagnosed for 3 years, and I'm still trying to figure it out. I don't know if you ever do! My husband also thinks if I just exercise it'll all go away, too. Right now I can't exercise, because I started walking a couple of weeks ago twice a week for 15 min., and both my knees are hurting too bad!
As far as housework, I can maybe do one thing a day. I do keep up with the kitchen everyday and the cat box, but the other things like vacuuming, dusting, bathrooms, I have to do only one of those things at a time. I can work for maybe 10 min., then I have to sit down and rest.
I have to even rest while doing my morning shower, fixing hair, makeup routine! It wears me out to go anywhere.
Do you work outside the home? If you do, that's probably about all you can handle in a day. I'm retired, so I've started to have to take things very slowly.
Anyway, I'm glad your medicine is helping some. You may need to talk to your doctor about adding something else. Most people take a combination of meds.
I take celexa (antidepressant), skelaxin (muscle relaxer) and xanax at night to sleep, and hydrocodone for pain. All those together plus my many vitamins help me to keep from crying everyday.
Take care, Hun, and keep coming here. You'll find lots of friends and a wealth of information.
Take care.....Elizabeth
amy
OMG, I cleaned my bathroom and I was exhausted and couldn't move for days. I told my doctor about that and she stated I over-did it. I feel so inadiquet (sp?). I feel my husband will get upset with me if things are not done. I do work outside the home. I am an Admin. Assistant at a small company. When I get home I just want to plop down and take a nap. But I have dinner to make, I have to take my son to Karate, and bring or pick up my girls from somewhere. The kids have their chores to do and it helps me emensely!!
I get so depressed. I am on Effexor 37.5mgs 2x's daily, I take Gabapentin 600mgs daily, Valium 5mgs daily, plus more meds for blood pressure.
Thanks again....Kelly
Yes, I feel this way too. Doing the just getting by tasks are more than I can handle most days. And I've found exercise only makes it worse, although most docs disagree. Maybe I do too much, like 10 minutes instead of 5 minutes.
As for getting your husband to understand, I wish I could help, but mine doesn't get it either. He just says I hurt too. He doesn't get that it's not the same and his goes away, mine doesn't. I try not to talk about my pain too much unless it's a worse than usual type of day just so he knows I'm comatose for the day.
I think most of us have felt the way you do. There is no drug that can get rid of all our pain and fatigue.
Sorry you have this diagnosis.
Hugs
Amy, the Gabapentin does help me. I still have the painful pain points, but it helps the throbbing. I have been doing excersise in my pool, which helps with the stiffness, but, if idle to long i'm stiff again. My doctor pushes the excersise too, and I don't feel a change. My sister-in-law is a physical therapist and she says the same thing....excersise! I get so wiped out. There are times I don't know whats worse, the pain or the exhaustion. But, I am trying to do what I am told, just wondering when I'll give up. Fall is approaching fast and the pool will have to be closed for the winter. Then what? I have severe athesma as well and the heat and cold aggrivate the condition. So, no walking in the winter, unless I go to a mall.....UGH, too tired for that!
My kids are ages 21, 16, 16, 11. My oldest lives in Oklahoma :( But the 16 year olds (my daughter and my niece) with my son help very much. I couldn't do it without them.
Hugs to each and every one of you!
Kelly
Wishing you the best.
amy
I too understand what you are feeling. I have to add that when I was on Gabapentin, I felt it helped with the nerve pain in my feet, but the longer I took it, the more my joints hurt., especially my knees. So keep an I on that. It could be making some of your joint pain worse. I had to quit taking it. Maybe your doctor can get you something more for your pain. It really is hard not to be able to do household work or exercise in any way. Exercise always makes me feel worse. Even when I try to do simple exercise in the hot tub. Some people try massage therapy and find it helps. I am trying acupuncture now, and am hoping it will give some relief.
Don't let your husband believe that you are lazy. This is not your fault and we all have these same problems getting by with the everyday things that others can do easily.
I hope you find something more to help with your pain.
it is so hard to get people to understand..
So sorry for Venus Williams.. champion tennis player and according to
my grand daughter she is one of the best female atheletes in the world.
she has come out to say she has to give up tennis because the pain is so great.. she probably gets more excersise than most and still suffers greatly with fibro.. you are in good company so to speak..
hugs
Bet