USE THE MACHINE ASAP!!! I have been dying to tell someone how much this has helped me! I have an automated machine that adjusts it's own pressure with my apnea. I struggle because of bladder spasms and nocturia that keeps me awake but if I didn't I would probably be superwoman at this point. It takes some getting used to but try as hard as you can to keep the mask on as soon as you get it and don't be discouraged. Like you, I have EXTREME exhaustion that brings me to tears on a regular basis. I have a super comfy mask. If I can find the name of it I will post it as soon as I can. All masks are different and I am convinced Respironics make the most comfortable. Do NOT get a Resmed mask. Period.

Yay! Be encouraged my Friend. Help is certainly on the way for you!!!!!

Gentle Hugs.

Muk

Oooops! Fibro fog! Did you mean you are already using the mask and it isn't working? I will feel very silly soon I think. I thought you were waiting for your sleep test results to come in. If that's the case....maybe your mask isn't at the pressure level it shoud be or it's leaking? Could be a flare too. Sometimes the mask won't override that. I have the chills a lot and very sore gums but no eyelid puffiness.

Sigh. I hate "the fog".

The toothache like pain reminds me alot of my nerve pain. Does it jump around? Differ in intensity? Throb in the spot that its in?

Honestly - the symptoms are difficult to pinpoint, because they are so varied.

You may have more of a sensitivity to cold, so maybe you could try keeping warmer. Wearing layers, getting an electric blanket or a heating pad.

I try to keep my salt content lower than average because salt gives me migraines, but maybe the doc is right about your eyes? Or honestly - some of us have lots of allergies so you may just be reacting to an allergen.

I really hope you can find some relief with something. I don't feel confident enough to give you recommendations about medications or supplements, but you could look into what would help with certain symptoms? I dunno - it can be dangerous.

But I wish you luck.

*lots of hugs*

Yes, the severe fatigue is a major annoyance. It is an effort to breath sometimes. I do too have that toothache pain that moves around. It's all part of having fibro. I use oxycodone to take the edge off the pain but still get breakthrough pain. Then I use ice packs, heating pad, light massaging, warm showers and baths to help ease the pain.

I went for a sleep study and was diagnose with sleep apnea. I too have a machine and am having a horrible time finding a mask that doesn't irritate my sinus passages and cause sinus infections. I see my dr. next Monday and hopefully we can find something that works for me. I hear using the machine helps alot but have to be honest--it's hard to sleep with that mask on. Not at all sexy either. lol

I think every dr. will tell you to exercise more with fibro even though most of us can barely walk to the bathroom most days. Just try to move around as much and best as you can. I too watch my salt because of swelling problems--especially in my hands. The eyelid swelling could be from crying too. I find when I cry a lot that my eyelids swell and also I see little red dots around my eyes. I usually put a cool cloth over my eyes for awhile and that helps. And do I cry alot?? Heck yeah! Fibro (and my other conditions) has changed my life completely and there are times I can't deal with it. So I cry.

I hope you are feeling better soon. Let us know what the results are on your sleeping test. Take care, Mare

Thanks, everyone for your replies.
I have been using a cpap machine for about a year.
I just hate feeling sore and tired.
It helps to know I'm not alone.

I am so sorry that you are having such a rough time right now. Not getting good quality sleep can definitely effect your entire life. I haven't found anything, other than sleep, that helps me. They probably need to adjust your CPAP. I hope you get to feeling better soon.
(((((gentle hugs)))))
Andrea