Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello, folks. I have a problem that maybe you can help me with, but please bear with me until I get to it. I can't help it. I need to vent about what happened yesterday. I'll get to the point eventually.
I believe some of you suffer from what I do. I've been told it's all the meds I'm on, my inability to exercise, my diet, etc., etc. etc. But NOTHING has worked.
I even went to a GI doctor, who refused to answer any questions until I had a colonoscopy, and when I was there for the colonoscopy, I told him I wanted the question answered and he said he would, but then, when I woke from the colonoscopy and was told nothing was wrong (I didn't expect anything to be wrong) I asked, where's the doctor? I only wanted him to address ONE thing, and already I've given him an office visit and a colonoscopy to bill my insurance company for, and I still haven't gotten THE answer to the ONE question I went to see him for! I'm convinced all he's interestsed in is doing procedures and not dispensing medical advice. If the procedure shows nothing, he sends you on your way. If it shows something, he sends you on your way to another specialist. All he does is procedures and bills insurance companies.
As you can see, I'm ticked off. My ONE question? Sorry it's taken so long to get to get to it:
I am PLAGUED with constant constipation. I have hypothyroidism (which can also contribute), as well as CFIDS and FM.
The constipation is so bad I can back up for 2 weeks. It gets impacted. I have episodes when I'm on the toilet for hours. (Sorry for all the details--but I suffer so much pain and misery when this happens, and it always does.)
I am WAY BEYOND such things as "eat fiber" or "eat fruit" or "try yogurt and probiotic pills" or "try Glycolax, formerly known as Miralax," "drink a lot," "try to get some exercise," ETC. ETC.
I've TRIED all that stuff! Useless!
The ONLY thing that works is Milk of Magnesia. I wanted the doctor to tell me how often it is safe to take it. Of course, I got NO ANSWER. After one office visit and a colonscopy they promised he would call with that answer and of course he didn't. I was told to make ANOTHER office appt (so he can bill the insurance, of course) and I said I wouldn't drag myself to another appointment and pay for it, all to get a 30 second response.
I can only assume that OTHER PEOPLE who suffer like this can give me unique suggestions that don't include the ones above. SO PLEASE, folks, tell me how you handle this. I NEED YOUR INPUT!!!!
Sorry I wrote so much but I'm so P***ed at the doctor and REALLY WANT advice from you dear people
THANK YOU in advance!
Wolfie
I believe some of you suffer from what I do. I've been told it's all the meds I'm on, my inability to exercise, my diet, etc., etc. etc. But NOTHING has worked.
I even went to a GI doctor, who refused to answer any questions until I had a colonoscopy, and when I was there for the colonoscopy, I told him I wanted the question answered and he said he would, but then, when I woke from the colonoscopy and was told nothing was wrong (I didn't expect anything to be wrong) I asked, where's the doctor? I only wanted him to address ONE thing, and already I've given him an office visit and a colonoscopy to bill my insurance company for, and I still haven't gotten THE answer to the ONE question I went to see him for! I'm convinced all he's interestsed in is doing procedures and not dispensing medical advice. If the procedure shows nothing, he sends you on your way. If it shows something, he sends you on your way to another specialist. All he does is procedures and bills insurance companies.
As you can see, I'm ticked off. My ONE question? Sorry it's taken so long to get to get to it:
I am PLAGUED with constant constipation. I have hypothyroidism (which can also contribute), as well as CFIDS and FM.
The constipation is so bad I can back up for 2 weeks. It gets impacted. I have episodes when I'm on the toilet for hours. (Sorry for all the details--but I suffer so much pain and misery when this happens, and it always does.)
I am WAY BEYOND such things as "eat fiber" or "eat fruit" or "try yogurt and probiotic pills" or "try Glycolax, formerly known as Miralax," "drink a lot," "try to get some exercise," ETC. ETC.
I've TRIED all that stuff! Useless!
The ONLY thing that works is Milk of Magnesia. I wanted the doctor to tell me how often it is safe to take it. Of course, I got NO ANSWER. After one office visit and a colonscopy they promised he would call with that answer and of course he didn't. I was told to make ANOTHER office appt (so he can bill the insurance, of course) and I said I wouldn't drag myself to another appointment and pay for it, all to get a 30 second response.
I can only assume that OTHER PEOPLE who suffer like this can give me unique suggestions that don't include the ones above. SO PLEASE, folks, tell me how you handle this. I NEED YOUR INPUT!!!!
Sorry I wrote so much but I'm so P***ed at the doctor and REALLY WANT advice from you dear people
THANK YOU in advance!
Wolfie
Did he do an Upper Scope as well ?
Is Your Thyroid Function Under Control ?
I Cannot Believe they would Not Address this Issue, as this can be Very serious Especially Long Term.
If All The "Natural Remedies" do not work, then ya best get back in and Make em Answer More then That Question..
Hugs & Hope ya Get some answers !!
Hugs,
Susan
I used a quarter of a lemon for juice and 1/4 tsp baking soda for my acid reflux. No much of a change in that but it sure has cleaned me out every time I've used it.
Joke here at home is I cannot go out in the a.m., early if i drank the lemon juice w/water the day before. this is from someone who has used fiber pills, probiotics, peanut butter, etc etc etc. Sure is something cheap to try.
Good luck sweetie that sounds just awful for you.
You are the best.
Best wishes...
I feel the same disappointment in doctors that you do. They just want to run tests and pad their bank accounts.
Good luck in finding a solution. You've gotten some good advice and this is just a suggestion. My doc thought the Miralax would be the " miracle cure" and was shocked when it didn't work. He also told me to sparingly use MOM. Also, I avoid sweets/sugar.
Sorry your going through this and others here and hope some of the ideas that have helped others will be helpful for you too.
I would maybe find a different doctor to see if you can.
Take care
gentle hugs
You probably have what's known as subclinical hypothyroidism where your blood tests are all within the normal range but you have symptoms of hypothyroidism such as the constipation that leads to an impacted bowel. That's what happened to me, and no one, not even the endocronologist picked it up. She put me on thyroid hormone as I had been in a flare for months and was deathly ill at least 6 days a week. She thought maybe the thyroid hormone would stimulate my pituitary gland or something. It resolved my constipation and my eyebrows started growing back. When I told my PCP about it and that my eyebrows were growing back, he exclaimed 'it's OBVIOUS you've had thyroid disease for YEARS!!!!!' I think the words just kind of fell out of his mouth without thinking. Now, with my other doctor, even when my labs are normal, I point to his words to back up the fact that I need just a little bit of the hormone to keep things working properly.
I want to comment too on what shellseeker says about 5-htp. If you aren't familiar with it, it puts serotonin into both the gut and brain. 95% of all our serotonin is in the gut which is why when you get nervous, your GI tract starts acting up. Serotonin helps speed the food through the GI tract.