Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
My neuro is working with a differential diagnosis of c fiber neuropathy of indeterminate origin which is a fancy way of saying something's wrong and he's not sure yet what it is. I've had all the blood work done, I do have hashimoto's, von wilderbrand's type a, pernicious anemia and i have no intrisic factors so i don't absorb b12 or iron. i take daily b12 shots and yearly venifir iv infusions. ( i was dx'd with all that in the early 90's) i've had them for years and it's under control with diet and meds. i'm also gluten, dairy and sugar intolerant. (i eat like a rabbit lol!)
my doc can't figure out if it's the chicken or the egg first and really it doens't matter. i just want to know what's wrong with me. my pcp dx'd me with fibro but my symptoms got worse and i lost use of my right hand for three days so he sent me to a neuro thinking it might be ms.
the neuro ran a nerve conduction study- i don't ever want to go thru that again *shudder* and it came back with mild nerve damage on the inside of my right leg. other than that, i'm good. which is good and bad. i'm trying to get him to do a mri but he wants to take the wait and see approach. he's put me on keppra, and it is helping with the fog and energy. i'm on the end of a flare up that would have been worse and i can tell when i miss a dose. i'm also on 90m mg cymbalta which helps with depression and zolpidem to sleep. did i mention the something, something something sleep disorder? i'm wide awake about every hour and a half.
i like my neuro, he has a sense of humor. he told me it was all in my brain. literally. that my brain is broken and that i'm not crazy. at least not from this. it's reading signals that aren't there and sending signals for no reason. but when i forget how to sign my name or make the number 8, or have to lecture off notes because i can't remember and i have chronic here after disease, i feel stupid and crazy.
i've reaserched and found you can have ms and have a clean mri, and the symptoms of fibro and ms are so close that an mri and lp are the only two ways to tell them apart.
anyway, after a long, rambling post, is anyone dealing with fibro and ms? what are your treamtnets and symptoms? anyone had success with keppra and cymbalta together?
my doc can't figure out if it's the chicken or the egg first and really it doens't matter. i just want to know what's wrong with me. my pcp dx'd me with fibro but my symptoms got worse and i lost use of my right hand for three days so he sent me to a neuro thinking it might be ms.
the neuro ran a nerve conduction study- i don't ever want to go thru that again *shudder* and it came back with mild nerve damage on the inside of my right leg. other than that, i'm good. which is good and bad. i'm trying to get him to do a mri but he wants to take the wait and see approach. he's put me on keppra, and it is helping with the fog and energy. i'm on the end of a flare up that would have been worse and i can tell when i miss a dose. i'm also on 90m mg cymbalta which helps with depression and zolpidem to sleep. did i mention the something, something something sleep disorder? i'm wide awake about every hour and a half.
i like my neuro, he has a sense of humor. he told me it was all in my brain. literally. that my brain is broken and that i'm not crazy. at least not from this. it's reading signals that aren't there and sending signals for no reason. but when i forget how to sign my name or make the number 8, or have to lecture off notes because i can't remember and i have chronic here after disease, i feel stupid and crazy.
i've reaserched and found you can have ms and have a clean mri, and the symptoms of fibro and ms are so close that an mri and lp are the only two ways to tell them apart.
anyway, after a long, rambling post, is anyone dealing with fibro and ms? what are your treamtnets and symptoms? anyone had success with keppra and cymbalta together?
xxx
My rheumatologist just did a spinal tap to look for some sort of MS related structures...said he would do an MRI if it turns up anything. With all these symptoms, I think it depends on whether a patient goes to a neuro or a rheumy as to how they approach it.
I am wondering about MS after I had a spell last month where my muscles in my legs gave out and I couldn't stand. I had to spend the day in bed, and either have my husband walk me to the bathroom like a puppet, or crawl myself. And, I have lots of tingling in my arms, and a weird numb spot on my face. At least I don't have the anemia or B12 issues.
My dr says that fibro is a syndrome and that you can have *just* fibro, or it along with any number of other things. You are right about the overlap! I hope you will find answers soon! (and myself, as well.)