Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I feel like I've been through a war today. I'm 43, and my body has been going majorly out-of-whack since early July. Today, my leg pain and stiffness (weakness?) was so bad, I literally had trouble walking. I mean my knees buckled, my right leg was wobbly/floppy and I had to "hold onto" the wall for support walking to my office. I starting crying out of frustration. It was all so embarrassing.
My PCP is saying I have CFS, but I know for a fact she didn't do all blood tests. The neuro I had been seeing for migraines keeps saying "somatic complaints," which hasn't been the best for my self esteem. He referred me to a neuropsychologist a month ago. He doesn't think I have fibro because I don't have the classic tender points or whatever. It's my thighs, calves, feet and biceps that are killing me and starting to burn when I "overuse" them! My shrink, on the other hand, referred me to a rheumy last week for fibro evaluation.
My neuro doesn't want me to see a rheumy yet. We're waiting on MRI results and blood test results. He has referred me to PT, which I start tomorrow. He won't give me lyrica or neurontin for pain (not sure why!?)
A friend of mine who has m.s. told me a lot of what's happening sounds like m.s. Who knows . . . I have heard that fibro and ms symptoms are similar. This has been the most frustrating, embarrassing day of my life.
I am divorced, lost my dad last Feb and my mom a year earlier. I think my only sibling and his wife think I'm a nut job. It really doesn't help.
As you all know, I'm not making any of this up! I feel 90 y.o. Sorry so long. Glad to be here,
Daisy
My PCP is saying I have CFS, but I know for a fact she didn't do all blood tests. The neuro I had been seeing for migraines keeps saying "somatic complaints," which hasn't been the best for my self esteem. He referred me to a neuropsychologist a month ago. He doesn't think I have fibro because I don't have the classic tender points or whatever. It's my thighs, calves, feet and biceps that are killing me and starting to burn when I "overuse" them! My shrink, on the other hand, referred me to a rheumy last week for fibro evaluation.
My neuro doesn't want me to see a rheumy yet. We're waiting on MRI results and blood test results. He has referred me to PT, which I start tomorrow. He won't give me lyrica or neurontin for pain (not sure why!?)
A friend of mine who has m.s. told me a lot of what's happening sounds like m.s. Who knows . . . I have heard that fibro and ms symptoms are similar. This has been the most frustrating, embarrassing day of my life.
I am divorced, lost my dad last Feb and my mom a year earlier. I think my only sibling and his wife think I'm a nut job. It really doesn't help.
As you all know, I'm not making any of this up! I feel 90 y.o. Sorry so long. Glad to be here,
Daisy
this is something you will prolly hafta do now for the very rest of your Life...Massage Therapy every couple of weeks...and Pool Therapy every other day at least...I Know if I get Busy and slack off on either one...within a few days my Muscles are SCREAMING at me...
Give it shot...no bad side effects...well...with the Massage ya may feel a bit weird for a few days after the first few times ya go in...drink ALOT of water...and with the Pool therapy ur Fatigue may Increase a Bit...rest as Often as ya need to...I would Not even Bother working out til ya get ur Muscles to Relax a bit...cause ur Just gonna Constantly Crash...and ya won't stick with it..
GL to ya !! Hugs !!
Maybe aquatherapy would be best. There's an aquatic rehab place on the list the neuro gave me. We'll see how tomorrow goes . . .
Hope you find some relief soon.