Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
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New here and need answers

mamawx4
mamawx4
I have recently been diagnosed with fribro and neuropathy[sp?].I also have some severe back problems that surgury is not an option. My dr started me out on LYRICA 50 MG,NEBUMETONE 500MG and Tizanidine HCL4mg the first vist.On the second visit he raised my Lyrica up to 75 mg.Then when all this wasn't helping the pain I talked to him last week and told him about it he raised the Lyrica again from 75 to 200mg and took me off the nebumetone and tizanidine and put me on SAVELLA and daypro and is setting me up with a pain clinic.I had a severe reaction to one of them and ended up in the ER.Because I was to take all three in the morning and at night,I took them at the same time we are not for certain which one it was.The dr said he was pretty sure it was the Daypro and took me off it.I am still afraid to take the others so I have not been taking them.Now the pain is so bad that I can't sleep,can't hardly move or think.And when you have 2 babies[I have custody of my grandbabies] to care for it makes it very hard to deal with.If it wasn't for family helping me with them I would be in real trouble.
My dr told me that the Savella was a new drug.Has anyone ever taken it?Do any of you have any ideas on dealing with the pain until the pain clinic calls with the appointment?It has gotten to the point that I can't remember a time when I haven't been in pain.It is taking over my whole life.Please help me!!
deleted_user
deleted_user
Welcome to our group but sorry that you "qualify". Fibro is something I wouldn't wish on my worst enemy.

I tried western medicine for 15 yrs and got no favorable results from any of it. So I have opted for acupuncture. And it works well for me. You might want to consider it, but if you don't believe it might help you, then don't waste your money because it is a total mind/body working together to heal the body.

I'm not pain free but it is at a level I can deal with life without all the meds ALL the time. I still take a muscle relaxer and an occasional pain pill. AND I do use medical marijuana...which helps a lot.

BUT these are my choices of treatment. Everyone seems to react different to different treatments so when you find one that works for you, stick with it regardless of what any one says. But please educate yourself on the drugs and treatements they suggest for you. KNOW the side effects of all them.

I"m sending you healing energy and hugs....
Basket
deleted_user
deleted_user
Welcome to our little group. So sorry to hear about your problems. My opinion is that your doctor pushed too many meds in your poor body at once! ONE AT A TIME is what he should have done and you may not be in the position you're in! There are many here who like SAVELLA. Some can't take it. I never have. I was on LYRICA, but it the side effects soon became apparent and I had to get off of it. I did like the pain killing effects, but didn't like not being able to see. I am not familiar with the other meds you are taking.
A lot of TLC, heat, baths if you can stand them, rest, you know the what you would do for your best friend routine. Until you hear from the pain clinic.
Now with SAVELLA, they have talked about a titillating pack, I believe that is what it's called, for the first two weeks. And always take it on a full stomach so you don't get sick. If your doctor started you at full dose, I think that would cause problems. I hope you get some relief soon.
~Sam~
deleted_user
deleted_user
I'm so sorry you are in so much pain. I truly understand pain as I have Rheumatoid Arthritis and Fibro. I know how difficult this is, but you DO have the strength and courage within to face this!! Take one day at a time, work to accept this disease, and relax your expectations on yourself...you cannot do everything like you did before.

Best of luck and keep sharing!! We're here for you.

((((hugs))))

Melanye
deleted_user
deleted_user
Oh my my ! I only start one medication at a time and stay on it for a week before starting another for that exact reason. I also learned that the hard way. Our bodies are so sensitive to medications we frequently get bad reactions and side effects. That must have been scary. I have not tried Savella but many have. I take hot showers and stretch while I'm in there, use my vibrating chair, hot or cold packs and use Vicks for aromatherapy. It does cause a lot of anxiety waiting for your next appt. at the pain Dr. I'm sure you will get it all sorted out. I know relief doesn't come fast enough ! Yesterday wouldn't be fast enough ! I hear that !
mamawx4
mamawx4
It not only scared me but my mother was with me at the ER.My chest started hurting and then I got to the point to where I COULDN'T TALK.Here comes a nurse with a nitro patch and I was trying to tell her that I couldn't have it because I,m allergic but she didn't understand me and my blood pressure went down to 60 over 54 and my mom freaked out and was running up and down the hall trying to get the nurse to do something.I still couldn't talk but knew everything that was going on around me.The next thing I knew I had 2 drs and about 3 nurses working on me,one of which knew me real well and kept talking to me about how much the babies needed me.It would have been so easy to just let go but I focused on her voice and held on.As soon as the nitro was cleaned from my skin every thing was alot better.By this time they had given me something to counter act the other meds.I will never start more than 1 new med at a time again.That was too close for comfort for me.
deleted_user
deleted_user
What a frightening experience ! I'm so sorry. Can you have it noted at the pharmacy and the Drs. office so you never have that medication again ? I know sometimes I forget what meds. I've already tried. I'm so glad you're ok.
deleted_user
deleted_user
Welcome to our group. So sorry for what you have been going through. Maybe a medical bracelet would be a good idea for the meds you are allergic to espicially if you are unable to communicate at the time you are receiving treatment.

Hope you feel better soon.

Hugs