Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi. how many of u have tried this and what where your results?I have an apt. with a Dr. that is using and it is my last hope.I have tried everythng else out there.I've had fibro since 2004(diagnosed then)problems before.I pray that he prescribes for me and it works because i cant live like this!
The thing about ldn is that I really hoped it would do wonders for my pain, and it maybe it is doing something, but not as much as I had hoped. I'm taking 3 mg of ldn in the am, and less codiene over a month. One reason is that ldn seems to help me tolerate larger doses of Advil. Also, I'm not taking codiene for 6 hour before and after taking the ldn. So these things may be the reasons for being able to decrease my use of opiates, rather than ldn.
But ldn is doing something good for me, because I was having a lot of tingling and weakness in my legs and that is better. I was putting on my pants on one morning and I realized I was able to stand on one foot without holding on to something! Also, my energy has increased. My house is a lot cleaner than last year. My brain fog--which has been considerable--has cleared.
I'm thinking of asking my neurologist to increase my dose to 4.5 in the hopes that I'd get more pain relief. 4.5 is the dose use in the stanford studies. It is getting really difficult to get opiates so I dearly wish I could find something else.
One thing you might try is an elimination diet. You avoid ALL common allergens for a number of days 4 to 7 and see if you see a significant decrease in pain. If you do, you introduce one food at a time to find the foods that are causing problems. I am intending to try this again to see if I've developed more problem foods since I eliminated citrus from my diet.
I hope very much you find the things that help you.
I've continued to be challenged by setting up my new computer, so I've had trouble answering questions lately.
Please don't get your hopes up too high about LDN. Two statistics stick in my mind regarding it's use with fibro: 30% reduction in pain, and it works in 30% of fibro patients.
As far, as pain is concerned, I still experience plenty of pain. I think if I had it do do again, I'd keep a pain diary before starting to see if I could compare pain levels with more certainty.
Although, I'm not sure about how much pain reduction I have had, I am definitely stronger, have more energy and am less "foggy."
The only side effects that have been noted are initial insomnia and more vivid dreams. I had some insomnia at first.
There are a couple of ideas of how it works: 1. it increases levels of your own opiate levels in your brain 2. It modulates the immune system in some way.
There have been other threads on LDN here, so if you check them, maybe you will find more answers. If you are prescribed LDN, I hope it works really well for you.
Ann
Here is some information:
http://en.wikipedia.org/wiki/Low-dose_naltrexone
Please give us an update if you try it.