Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
First of all... Hello group, it's been a while since I've posted here. I check in every once in a while. Hope everyone is as well as possible.
So it's normal for me to have back pain (DDD & 2 surgeries) as well as lower abdominal/ pelvic pain ( endometriosis, fibroids, re occurring uti/bladder infections, extremely painful periods) but since July I've had this left flank pain in conjunction with a change in my bowl habits associated with pain & bloating. I've also lost my appetite and often feel full easily. I've gone to the ER 3 times since July because of SEVERE pain with fever. The first time they said I had a kidney infection, and gave antibiotics & IV. After treatment, my level 9-10 pain was now a 7-8. When the infections are present, I have SHARP stabbing pains that often feel like an electrical jolt. Any way, I am looking for a new Dr. As I'm pretty new to my area. Had a Dr. But for insurance reasons had to find another. I asked the ER Dr. to refer mr to someone. I go & couldn't be more disappointed! I tell this Dr. all of this and am visibly exhausted. He said that he wasn't concerned and that it was just an infection. I informed him that this was the 3rd X I felt the need to seek help for the pain, begged him not to disregard the fact that even though the 3 infections appear to be gone, I'm still severely uncomfortable (wake from stabbing Pain in the back & flank that is now affecting the groin & running down my leg) . He gave me a funny look and asked why I didn't have another Dr. & said he wants my medical records. No Problem. We set up a vaginal ultrasound and they find a tumor and 4. Cysts, my uterus is enlarged, as well as my L ovary. The cyst on my L ovary is complex ( the 1 of real concern) I go back in to follow up & ( elevated BP, still severe pain in the back, L flank, pelvis, groin, and now myL leg) he still has not given anything for pain, so I asked for something to help me sleep. He said " that's what the Naproxen & Tramadol is for"... I was shocked! He asked if there was anything else I needed and I asked him to pray for me...... Back in March 13, I weened myself off of pain medicine when I relocated. I used Marijuana to help. It of course didn't relieve all my pain but it did inspire my daughters ( oldest a heroine addict) and saved me the horror of the side effects of prescription drugs.
So he gave me a referral to OBGYN and that's over a month away......SO DISGUSTED :(
Gotta go
So it's normal for me to have back pain (DDD & 2 surgeries) as well as lower abdominal/ pelvic pain ( endometriosis, fibroids, re occurring uti/bladder infections, extremely painful periods) but since July I've had this left flank pain in conjunction with a change in my bowl habits associated with pain & bloating. I've also lost my appetite and often feel full easily. I've gone to the ER 3 times since July because of SEVERE pain with fever. The first time they said I had a kidney infection, and gave antibiotics & IV. After treatment, my level 9-10 pain was now a 7-8. When the infections are present, I have SHARP stabbing pains that often feel like an electrical jolt. Any way, I am looking for a new Dr. As I'm pretty new to my area. Had a Dr. But for insurance reasons had to find another. I asked the ER Dr. to refer mr to someone. I go & couldn't be more disappointed! I tell this Dr. all of this and am visibly exhausted. He said that he wasn't concerned and that it was just an infection. I informed him that this was the 3rd X I felt the need to seek help for the pain, begged him not to disregard the fact that even though the 3 infections appear to be gone, I'm still severely uncomfortable (wake from stabbing Pain in the back & flank that is now affecting the groin & running down my leg) . He gave me a funny look and asked why I didn't have another Dr. & said he wants my medical records. No Problem. We set up a vaginal ultrasound and they find a tumor and 4. Cysts, my uterus is enlarged, as well as my L ovary. The cyst on my L ovary is complex ( the 1 of real concern) I go back in to follow up & ( elevated BP, still severe pain in the back, L flank, pelvis, groin, and now myL leg) he still has not given anything for pain, so I asked for something to help me sleep. He said " that's what the Naproxen & Tramadol is for"... I was shocked! He asked if there was anything else I needed and I asked him to pray for me...... Back in March 13, I weened myself off of pain medicine when I relocated. I used Marijuana to help. It of course didn't relieve all my pain but it did inspire my daughters ( oldest a heroine addict) and saved me the horror of the side effects of prescription drugs.
So he gave me a referral to OBGYN and that's over a month away......SO DISGUSTED :(
Gotta go
Keep us updated,
For what it may be worth, my fibro started (or right before the back pains that led to fibro) with recurrent bladder infections and with stabbing pain in the lower abdomen. Medical labels for pain down there are interstitial cystitis (urinary) and vulvodynia (vagina/uterus). The pains went away on Cymbalta and the infections have gone away (mostly) with low dose naltrexone (3.0 mg), which boosts the immune system
The reason why we get more infections is because we are in pain, being in pain, our bodies call out its "army" to fight a physical injury. In other words, it generates inflammatory agents to "heal" the injury. With all attention at trying to heal a physical injury, the body is not "looking" at defending itself from bacteria. This is my simplistic understanding of what I have read.
Hang in there. Hoping the GYNO is the light at the end of the tunnel.
Rebecca
Aka. Rebeccavan71
Don't dwell on the cancer thing they will not know what you have until they look inside. I had the same symptoms for years and like you I had endometriosis, fibroids and ovarian cysts which caused the same symptoms as you have. I only knew I had fibroids and cysts that's about all they can see from the outside.
I had a hysterectomy. I hope you feel better soon..