Littlemart, I tell my family all the time I will die from cancer. It will spread throughout my body before we ever discover it. Our bodies are already hurting and so abnormal. I don't know how they would ever find it unless your normal and then start having symptoms of cancer. We already have the darn symptoms! I'm glad I'm not the only one thinking these things. And I know it's anxiety talking but we there is some truth to it. I just pray I will have a new symptom that is very obvious to be cancer related. I also pray the doctors find more in discovering Fibro.

I understand what you are saying littlemart! I don't usually think cancer, but I have often thought brain tumor. I figure there is a tumor in there making me feel all this pain but that it is too small to see on an MRI. So no matter how much I complain about the pain, doctors will just think it is fibro. I suppose in all fairness, my doctors have been great about listening to me since I was diagnosed -- albeit the diagnosis was close to 20 years after I started having symptoms. LOL! But I think these days they trust that I know the difference between my fibro pain and something else. I hope the same for you.

Gentle hugs,
Kimber

I think the reason my mind is wandering to "cancer" is because I have so many illnesses. I started with MS and just exploded with autoimmune problems after that. They all share symptoms and I never know what is kicking up at any given time. So I also am never sure which meds to take or which ones I can combine. I am medicine-phobic. So I have pain everywhere all the time. And most of my doctors like to turn everything back on the MS. But I always feel like they are missing something. I take my temp, my blood pressure, check my heart rate and they are usually normal. Sometimes my heart rate and b/p are elevated. But I guess that's normal too. I just always hear about people (friends) who had cancer that spread. So I wonder about all this pain that seems to have spread throughout my body. Thanks so much. Having allies always calms me.

Hmm. That's a tough one. First off, check it out with a neurologist and ask them about that whole phenomenon----mine is pretty da*n smart and very good at explaining this pain crapola even if I do see him for epilepsy! He knows how the brain works.
Also, with multiple illnesses----oh geez, do I know that feeling----you'd think with "just" epilepsy and fibro and PTSD, I'd be chipper, but since a bad fall in 2011, I'm partially disabled and convinced I'm a big old lump of ambulatory compost. Because that's how I feel. As if I *must* be rotting for it to be this *rotten*. ...

Time to talk to the docs you *trust* to be hoenst, and rant away here, okay? Anxiety is something we all know:-) Purrrrrrrrz.

It is my impression from this post and others that you don't take your medication/s as prescribed. To manage your pain issues properly, that is the first line of defense. I'd like to gently suggest that you consider getting some professional help with this issue. You deserve a better quality of life instead of constantly cycling through periods of increased pain and angst. Take care.

Fantod I have gone over my meds with my pharmacists several times. The list keeps changing with each new problem. I really don't trust some of these meds. I have refused to take the Osteoporosis meds! And my Neuro took me off all the MS meds. I seem to have reactions to a lot of new meds.... they make my heart rate go up which scares me. And I've developed allergies to some of them. So, part of this is my fault. I just have to figure it all out.

Guess I just have a hard time believing that Fibro can cause so much pain in so many areas. The MS makes everything worse and then my anxious mind drifts off to.... "what if?"

Have you ever considered using a compound pharmacy to change/lower your medication dosage to see if you can better tolerate it? Compound pharmacies are everywhere. If one is not convenient to your home, the medication can be made up and mailed to you.

I'm extremely sensitive to medication. My list of stuff that I've had a bad reaction to is long in some instances weird. I have regular fights with new physicians about what I can or can't tolerate. I get what you are saying but you should keep trying to find things that do work. I have a compound pharmacy close by and have had to use them on several occasions.

Fibromyalgia is Neuro muscular issue that causes widespread, chronic pain. Coupled with MS it is a b*tch. The longer a chronic pain cycle continues, the harder it becomes to manage or stop. Chronic pain also affects cognitive ability. Those are two good reasons to keep trying to find things that work whether it is medication, acupuncture, massage etc.
Take care.

Thank you Fantod. I plan on trying massage soon. We have someone near our home that does it. I've used some compounds in the past. They are so expensive! I just keep experimenting until I find what works best. So far I can use Baclofen well and 100 mg of Gabapentin. Can't get beyond that or I'm dizzy all day! Finding that Peppermint Essential Oil actually works!