Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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im new on here..

simone71
simone71
im new on hear and im having issues with people in my life that do not get it. i was really sick when the temperature drastically dropped here in alberta a few days ago, right when i was suppose to go visiting for xmas and i HAD to cancel. i was in bed for 2 days and i heard that they seemed annoyed that i wasnt there, like i was faking or something lol. then when i showed up to say hi yesterday they actually said, "should we be keeping our distance?" LIKE I HAD THE FLU OR SOMETHING like are you kidding me? so you know what i did thanx to this support group? lol i sent them a few posts that said its hard cuz no one gets it or understands and added, "i joined a support group" i feel like that might offend them but hey ive been pretty offended too right? i actually feel alot happier now :)
twinmomab
twinmomab
I feel your pain and frustration literally. It's too hard for people to understand or relate to what we are going through. I get it but it doesn't make it any easier for us to cope with. I told my husband over Christmas I want a wheelchair so people understand the pain I'm in. They can't see our pain so they don't get it. I am lucky that my family does understand what I have and that I'm in pain, but it really doesn't change how they treat me. My husbands family has no clue and that makes it rough on me when I'm around them. Heck my husband doesn't understand and still doesn't help me enough. It's so hard living our life.

Welcome to the group!
simone71
simone71
thanx :)
fibrolizzy
fibrolizzy
I'm so sorry you had to go through that. They were pretty uncaring towards you, that's for sure. It's so hard having this illness, because even doctors don't agree or understand about it.

I've learned to just keep my distance from those who don't get it or are rude like that. They are toxic to you. Unfortunately the only place we get true understanding is from the the ones who deal with this.

Take care....we're here for you!
simone71
simone71
i know.. im starting to learn that with some people i just have to let it go cuz theyll never get it :( and im not at all the type to talk about things that are wrong with me or ask for help, so explaining it to them just feels like im being pathetic or something so i dont wanna do that.