Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi guys,
Sorry for the long post but I need to get some of this horribleness out of me.
For those of you that read my last post. I have since been diagnosed with fibro and started taking meds so physically I am feeling better for that on the whole. However my husband refuses to understand or try to learn about what I'm going through, he wont even acknowledge it so we just pretend it doesn't exist which is better than being insulted... it's troublesome because I am reliant on him to get my medication - he is inconsistent because he thinks it's all rubbish and its 'no big deal' to miss a few days because the responsibility is too much. It's so humiliating depending on someone who finds it a burden to care for you. He is the same with our 7 month old daughter who has severe GER caused by a cows milk protein allergy so I am really restricted to what I can eat and our money situation allows NO room for manoeuvre ... so I have a baby that won't sleep for more than 20 minutes who's in painWith no where safe to put her down without being right next to her, no toys to entertain her in a death trap of an apartment... barely able to eat 500 calories a day. I am the first one awake in the morning and the last one to go to sleep. I don't know a single person here and don't have any friends in my home country... but you know what I can be patient to handle all of that really.. but when my husband ignores me all day and is nasty because I took a shower for the first time in God knows how long Instead of taking care of his needs right that second.. because really that's the only chance I will get. I can't handle it... now I will spend another week alone stuck in this apartment because I am 'selfish and like everything just my own way'. The loneliness is crushing me. That is just a snippet into things right now for me. For sure I could go on but maybe that's labouring the point. I feel so worthless and its like almost every avenue of help is blocked for one reason or another. I just really need a friend.
Thanks for reading.
Oh and by the way a big BIG thank you to basketball mom for advising me to print out a symptom list and go through it with my rheumatologist. I saved me untold amounts
Sorry for the long post but I need to get some of this horribleness out of me.
For those of you that read my last post. I have since been diagnosed with fibro and started taking meds so physically I am feeling better for that on the whole. However my husband refuses to understand or try to learn about what I'm going through, he wont even acknowledge it so we just pretend it doesn't exist which is better than being insulted... it's troublesome because I am reliant on him to get my medication - he is inconsistent because he thinks it's all rubbish and its 'no big deal' to miss a few days because the responsibility is too much. It's so humiliating depending on someone who finds it a burden to care for you. He is the same with our 7 month old daughter who has severe GER caused by a cows milk protein allergy so I am really restricted to what I can eat and our money situation allows NO room for manoeuvre ... so I have a baby that won't sleep for more than 20 minutes who's in painWith no where safe to put her down without being right next to her, no toys to entertain her in a death trap of an apartment... barely able to eat 500 calories a day. I am the first one awake in the morning and the last one to go to sleep. I don't know a single person here and don't have any friends in my home country... but you know what I can be patient to handle all of that really.. but when my husband ignores me all day and is nasty because I took a shower for the first time in God knows how long Instead of taking care of his needs right that second.. because really that's the only chance I will get. I can't handle it... now I will spend another week alone stuck in this apartment because I am 'selfish and like everything just my own way'. The loneliness is crushing me. That is just a snippet into things right now for me. For sure I could go on but maybe that's labouring the point. I feel so worthless and its like almost every avenue of help is blocked for one reason or another. I just really need a friend.
Thanks for reading.
Oh and by the way a big BIG thank you to basketball mom for advising me to print out a symptom list and go through it with my rheumatologist. I saved me untold amounts
I hope things improve for you. I am going to be blunt here - It sounds like you are in a prison and your husband is the warden. Do you have family you and the baby could stay with? Anywhere?
I didn't reply because the situation kind of came to a head. My husband and I had a huge argument (to end all arguments I hope) it was pretty brutal, we had already said ok , divorce it is .. just how to we deal with our daughter. The thought of our princess coming from a broken home just absolutely destroyed me inside and I said to myself I need to be as humble and reasonable as possible ... eventually something has to give.
I'm praying that this is a new chapter but one the last points of our argument was my fibro, still didn't really seem to bite much when I invited him to learn more and explained how much it would help our marriage.... but ... maybe these things take time. The important thing is we are taking steps to be mutually mindful of the other ones situation.
Baby has a good doctor working on her case now. I am doing a full elimination diet to find out exactly what she's allergic to.
Me ? I'm still having panic attacks .. now for no apparent reason..and a particularly bad flare up of fibro... trying to just ride the wave... it's hard but I know from experience things hardly tend to stay the same.... especially when you want them too lol!
Praying for you and your family.