Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Just wanted to share this poem by Hannah Hill--hope she is okay with this. Sometimes I do forget I am more than fibro and wish I could just step outside this body and feel like all the other 'normals' out there.
As this poem says so well, one of the worst parts of fibro is never know what tomorrow will bring, makes it hard to plan our lives.
When someone asks me to go somewhere or do something I always have to do a mental and physical body scan and ask myself, "Will they be ok if I cancel at the last minute? What kind of food will be served? Will the environment be noisy? Will there be someplace I can get away by myself for a rest?" And the list goes on.
By Hannah Hill
As a Fibromyalgia sufferer I do not want your sympathy, I just want you to understand who I am because I may forget.
Yesterday I may have been limping, today I may be skipping, tomorrow I may be having a sofa day.
Yesterday I may have been on top of the world, today I may want to stay indoors, tomorrow I may not be able to get out of bed.
Although my pain is all over, yesterday my leg may have been hurting more than my arm, today its my head, tomorrow it may be my back.
Yesterday I was able to make a three-course meal, today its a frozen meal, tomorrow its jam and bread.
Yesterday I climbed a mountain, today I may manage a mile, tomorrow I may manage a smile.
Yesterday I may have been engaging in great conversation, today I may forget my words, tomorrow I may have forgotten we spoke.
It's not easy living with Fibromyalgia, even harder when others do not understand you!
As this poem says so well, one of the worst parts of fibro is never know what tomorrow will bring, makes it hard to plan our lives.
When someone asks me to go somewhere or do something I always have to do a mental and physical body scan and ask myself, "Will they be ok if I cancel at the last minute? What kind of food will be served? Will the environment be noisy? Will there be someplace I can get away by myself for a rest?" And the list goes on.
By Hannah Hill
As a Fibromyalgia sufferer I do not want your sympathy, I just want you to understand who I am because I may forget.
Yesterday I may have been limping, today I may be skipping, tomorrow I may be having a sofa day.
Yesterday I may have been on top of the world, today I may want to stay indoors, tomorrow I may not be able to get out of bed.
Although my pain is all over, yesterday my leg may have been hurting more than my arm, today its my head, tomorrow it may be my back.
Yesterday I was able to make a three-course meal, today its a frozen meal, tomorrow its jam and bread.
Yesterday I climbed a mountain, today I may manage a mile, tomorrow I may manage a smile.
Yesterday I may have been engaging in great conversation, today I may forget my words, tomorrow I may have forgotten we spoke.
It's not easy living with Fibromyalgia, even harder when others do not understand you!
adding to your list:
do I have anything else I HAVE to do that day or next day or couple days later? Because if I do sometihing one day I am down and out for a day or two.
Today I went to the grocery store. I cannot do anything else today! And the heat just makes me worse.
I asked my hubby earlier to turn on the A/C.
I went to feed the cat and came back in.
Asked why it was on.
LOL
yeah
It was the 1st thing I had ever saw that said so well what I feel and couldn't say....
I'm going to make a copy of this one, and put it on the refrig..!!!
So, that EVERYONE who lives in my house might GET IT, but probably not!!!
Gknees, I'll be thanking you for probably years, and camas and Hannah too! bless you! all!