With you on this! I went home because I couldn't take it anymore. I was SO tired and people were not getting it. It's so super-annoying. How many times do I have to explain I have an illness and what it's all about? That no, I can not run around from this party to that party to this friend who wants to do this and that and then get a horrible night sleep because no one in my family knows how to be quiet so I can sleep? I guess annually... *sigh* The problems with being sick but not looking sick, and I guess it's convenient to forget.

ya i feel your frustration MORE than once a year lol im not a complainer so people assume im fine when ive said more than once that im actually never fine but i get through the days. i really dont feel like giving daily updates on whats wrong with me "today" lol but it seems like very few are smart enough to get it. and if i had something like MS which is alot of similar symptoms (but thankfully FM isnt fatal) im sure id get treated very differently day to day. its sad that people with this have to almost beg for understanding lol dont get me wrong theres people in my life that DO get it but the ones that dont sure are frustrating.

I'm not really a complainer either, unless it is REALLY bad, which really the only time I'm around my family and the conditions are perfect for being really bad is Christmas (stress, not enough sleep, winter) Yeah, I don't like to beg for understanding but it's really annoying when I'm telling them I'm really in a lot of pain and they ask "why?" Ergh. Agreed, thankfully FM isn't fatal, and I don't want them to treat me like I'm incapable, but, if I am telling them I am in pain and am really tired, they don't seem to understand that if I'm saying that, I'm dead-on-my-feet tired and need to be left alone. Unfortunately, most people in my life forget. The only ones who remember are a good friend of mine whose mom has FM and my boyfriend whose mom also has it (both mom's have it very, very bad) I don't want to be one of those people who complains every day just to remind people, I save complaining for when it's bad enough to complain. I really do appreciate people who DO get it, my friend and my boyfriend are so wonderful. Oh to say "I'm in a lot of pain." and have them respond with "Fibro?" Seriously, just remembering what it is I HAVE is amazing. They also understand I need more rest and all the things that make it worse. I love those two. Wish there were more like them. Glad I found this group, more people who understand! :)

its definately what i needed today :) the few things ive read that sound like me helped me feel a bit better forsure

Ugh, I hear ya. I feel like I was run over by a freight train, and that was *after* eight hours of sleep!

I feel like getting a tattoo on my forehead that says, "You can't see heart attacks but they're still real, too!".... not that anyone outside FM would get it, possibly, but you know how it is....

I feel horrible as well and I even told my husband I wish I had a wheelchair at this point. No one can see our pain! If they only knew how bad I was hurting and after a day of family on eve and Christmas day I wanted to cry from pain and weakness.