Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
-shoulder socket pain/tenderness after repetitive motions, can't lift arms above waistline when it's at it's worst,
accompanied by severe weakness (i'm a side-sleeper and this is HELL for me because sleeping makes it
worse!)
-hip throbbing/burning/tenderness deep within the socket, completely immobile & have to sit on bags of ice
(need walking support bad! & a way to elevate hips?)(JOURNAL NOTES: "it just feels like i have a charlie
horse inside my hip socket along with a tearing/burning sensation. can't put any weight on it and can't seem
to set it in a position where it's not "pulling" the socket") this pain gets so bad it causes me to literally writhe
because no matter what i do i can't get the weight off my hips!
-calf pain/tenderness accompanies the hip pain along with general & extreme weakness in the ankles/leg
(ankles give out!! have had falling accidents resulting in severe sprain nearly breaking ankle and other foot
bones)
-shooting searing pain shooting down butt & legs possibly sciatica? muscles maybe swollen & very tender in
leg & butt. occurs with hip pain and without hip pain (this causes me to adjust my weight to only my left leg,
which then gets weak aswell, causing my ankle and knee to slip and give out under the stress)
-ankles and feet swell after about 5 hours of being on them non-stop. bad enough to make me immobile for 2
or 3 days and my shoes won't fit or become a dangerously tight sqeeze. (been using ace bandage/wrap &
soaks but doesn't help)
sometimes the pain and swelling will subside if i stay off my feet and just sleep. this can mean 15 hours of
sleep or 40-something. but if i don't rest, i end up bed or couch ridden. these symptoms can last for weeks
and mostly occur randomly.
800mg ibuprofen every 4 hours takes some of the throbbing sensation away from my hips but doesn't help
otherwise. I still cannot bear any weight.
150mg Tramadol every 6 hours does relieve pain on moderate pain days. If i'm limping, tramadol usually
helps. (this medicine makes me sick taken with and without food) But on days when i'm sitting on bags of ice,
NOTHING HELPS!! I have tried Mobic (for imflammation), Flexeril (muscle relaxer), Ambien (to sleep when in pain) in combination. Neurontin (im allergic), Celexa (for pain), Elavil (for pain), Cymbalta(for pain) & Tramadol (for pain). I have not tried Lyrica because its similar chemically to Neurontin/Gabapentin to which I am highly allergic.
I've been passed along to 11 different doctors/specialists here in NC. The rheumatologists won't even see me as a patient. The last one told me I was screwed and just to keep taking pain meds. I am not currently taking anything but ibuprofen. I haven't seen a doctor since Janurary after what the rheumy told me.
What should I do.. and when I see another dr.. what treatment should I ask to try next. is there anything else left to try?? :(
accompanied by severe weakness (i'm a side-sleeper and this is HELL for me because sleeping makes it
worse!)
-hip throbbing/burning/tenderness deep within the socket, completely immobile & have to sit on bags of ice
(need walking support bad! & a way to elevate hips?)(JOURNAL NOTES: "it just feels like i have a charlie
horse inside my hip socket along with a tearing/burning sensation. can't put any weight on it and can't seem
to set it in a position where it's not "pulling" the socket") this pain gets so bad it causes me to literally writhe
because no matter what i do i can't get the weight off my hips!
-calf pain/tenderness accompanies the hip pain along with general & extreme weakness in the ankles/leg
(ankles give out!! have had falling accidents resulting in severe sprain nearly breaking ankle and other foot
bones)
-shooting searing pain shooting down butt & legs possibly sciatica? muscles maybe swollen & very tender in
leg & butt. occurs with hip pain and without hip pain (this causes me to adjust my weight to only my left leg,
which then gets weak aswell, causing my ankle and knee to slip and give out under the stress)
-ankles and feet swell after about 5 hours of being on them non-stop. bad enough to make me immobile for 2
or 3 days and my shoes won't fit or become a dangerously tight sqeeze. (been using ace bandage/wrap &
soaks but doesn't help)
sometimes the pain and swelling will subside if i stay off my feet and just sleep. this can mean 15 hours of
sleep or 40-something. but if i don't rest, i end up bed or couch ridden. these symptoms can last for weeks
and mostly occur randomly.
800mg ibuprofen every 4 hours takes some of the throbbing sensation away from my hips but doesn't help
otherwise. I still cannot bear any weight.
150mg Tramadol every 6 hours does relieve pain on moderate pain days. If i'm limping, tramadol usually
helps. (this medicine makes me sick taken with and without food) But on days when i'm sitting on bags of ice,
NOTHING HELPS!! I have tried Mobic (for imflammation), Flexeril (muscle relaxer), Ambien (to sleep when in pain) in combination. Neurontin (im allergic), Celexa (for pain), Elavil (for pain), Cymbalta(for pain) & Tramadol (for pain). I have not tried Lyrica because its similar chemically to Neurontin/Gabapentin to which I am highly allergic.
I've been passed along to 11 different doctors/specialists here in NC. The rheumatologists won't even see me as a patient. The last one told me I was screwed and just to keep taking pain meds. I am not currently taking anything but ibuprofen. I haven't seen a doctor since Janurary after what the rheumy told me.
What should I do.. and when I see another dr.. what treatment should I ask to try next. is there anything else left to try?? :(
You could try putting pillows under your knees to help relieve the pressure on your lower back and hips. Heat pads help too for muscle pain and spasms. You'll probably get a lot more advice and tips on the main boards, try it and see.
If you can't get referred, call the hospital and see how you can get seen. Supposedly, they can't turn you away if you just show up in the emergency room; however, I don't know how they charge.
Good luck. I do wish I had a better answer for all that you've been through.
VJMP
No, No teaching hospitals/schools or anything that I know of near by. The closest thing they have at the college here is the dental program :/
There are alot of things that mimic fibro. Hope you can get back get a complete bloodpanel work done by a neurologist or rheumy, seem they run different test then a reg dr runs.
My vitamin D is below 10 right now, maybe even in the negative. They have given me higher and higher doses to take every day, but i'm not absorbing it for some reason. I know celiacs disease would cause absorption problems but I was tested for that aswell and it was negative. My doctors have said that my symptoms are too severe to be vitamin D related entirely so i dont know :|