Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I am new here and this is my first post. I was first diagnosed with what my doctor thought was Fibromyalgia. During a 4 yrs period my health continue to get worse.,and because of this my doctor want me to get a second opinion . I did and the second doctor thought it was MS. It is now coming up on 6 years ,and the doctors go back and forth with my diagnoses, and what they should do with me. Here are some of the problem that I am having and I am hoping you guys might be able to help shed some light on this....
*Muscle weakness and pain
*Muscle twitching
*Blurred vision
*Numbness/pins and needles
*Joint pain
*Chronic sore throat, often with recurrent flu-like symptoms
*Irritable bowel syndrome
*Sensitivities (to light, touch, food, chemicals, perfume, paint ,etc.)
*Alteration of taste and smell
*Headaches
*Rashes
*Dryness of mucous membranes (throat, mouth, eyes)
*Uncomfortable or frequent urination
*Poor concentration
*'Foggy' thinking
*Difficulty speaking and choosing words appropriately (for example saying, black when you mean white)
*Poor memory
*Interrupted sleep patterns
*Depression
* Mood swings, anxiety
*Feeling 'disoriented'
*easily confused
*Slow information processing
*Difficulty retrieving words
*Occasional slurred speech
*Forgetfulness (primarily short-term)
*Overall feeling of "spaciness" or "brainfog"
*Loss of muscular coordination
*Muscle weakness
*Muscle twitching
*Loss of balance and clumsiness
*Motor overload, with staggering and weakness
*dizziness
*numbness
*tinnitus (ringing in the ears)
*nausea
*shooting pain
*Overload may cause temporary immobilization
*Restless legs syndrome
*periodic limb movement disorder (jerking or twitching during sleep)
*generalized muscle pain
*new onset headaches
*aching, burning shooting pains anywhere in the body
*fibromyalgia
*abdominal pain
Lightheadedness, dizziness, nausea, fatigue, irregular breathing, visual changes sweating, headaches.
*shortness of breath WITH whizzing
*bloating
*nausea
*urinary frequency
*pain in lower abdomen
*night sweats or other sweating episodes
*weight change, loss of appetite, and abnormal weight gain.
*worsening of symptoms under increased stress (physical or emotional)
*loss of adaptation to situations of overload
Sleep apnea
gastroparesis
Sorry if I wrote doubles.
Okay, now I have two questions to ask. The first one is do my symptoms sound like FM to you guys, and if so do you all have as many symptoms/aliment as I do? The second ,and I have seen a few different response to this question online. Because of my clumsiness/ staggering/ off balance I was falling a lot, and was getting hurt. So my doctor thought it best for me to be in a wheelchair are any of you in a wheelchair or have you heard of any other Fibromyalgia patients in wheelchair?
Thank you for any information
*Muscle weakness and pain
*Muscle twitching
*Blurred vision
*Numbness/pins and needles
*Joint pain
*Chronic sore throat, often with recurrent flu-like symptoms
*Irritable bowel syndrome
*Sensitivities (to light, touch, food, chemicals, perfume, paint ,etc.)
*Alteration of taste and smell
*Headaches
*Rashes
*Dryness of mucous membranes (throat, mouth, eyes)
*Uncomfortable or frequent urination
*Poor concentration
*'Foggy' thinking
*Difficulty speaking and choosing words appropriately (for example saying, black when you mean white)
*Poor memory
*Interrupted sleep patterns
*Depression
* Mood swings, anxiety
*Feeling 'disoriented'
*easily confused
*Slow information processing
*Difficulty retrieving words
*Occasional slurred speech
*Forgetfulness (primarily short-term)
*Overall feeling of "spaciness" or "brainfog"
*Loss of muscular coordination
*Muscle weakness
*Muscle twitching
*Loss of balance and clumsiness
*Motor overload, with staggering and weakness
*dizziness
*numbness
*tinnitus (ringing in the ears)
*nausea
*shooting pain
*Overload may cause temporary immobilization
*Restless legs syndrome
*periodic limb movement disorder (jerking or twitching during sleep)
*generalized muscle pain
*new onset headaches
*aching, burning shooting pains anywhere in the body
*fibromyalgia
*abdominal pain
Lightheadedness, dizziness, nausea, fatigue, irregular breathing, visual changes sweating, headaches.
*shortness of breath WITH whizzing
*bloating
*nausea
*urinary frequency
*pain in lower abdomen
*night sweats or other sweating episodes
*weight change, loss of appetite, and abnormal weight gain.
*worsening of symptoms under increased stress (physical or emotional)
*loss of adaptation to situations of overload
Sleep apnea
gastroparesis
Sorry if I wrote doubles.
Okay, now I have two questions to ask. The first one is do my symptoms sound like FM to you guys, and if so do you all have as many symptoms/aliment as I do? The second ,and I have seen a few different response to this question online. Because of my clumsiness/ staggering/ off balance I was falling a lot, and was getting hurt. So my doctor thought it best for me to be in a wheelchair are any of you in a wheelchair or have you heard of any other Fibromyalgia patients in wheelchair?
Thank you for any information
-
My cat is going on trial for crimes against skink-anity. SIX in six weeks. Three this last week alone.The crack is maybe 1/4 inche wide. Maybe. Skink skitters past, her paw shoots out, her claw hooks in, she yanks, and somehow, having defied physics... WHAM. Skink-o-rama.Now, don't get me wrong, it's nice that she's a pesticidal maniac, but OMG. Skinks do no harm. They don't come inside. WTF.So,...
-
I'm alive, I'm sleeping like a rock, and for some reason I wanted cherry juice so that seems to be helping. (??? Weirdo that I am.)***Infamous therapies over history:1. The Attic. The madwoman in the attic is a motif in literature going waaaaaay back: the nutty female relative is locked in the attic. (See: Jane Eyre by Charlotte Bronte for a grotesquely racist version of it, and Charlotte Perkins...
It would be helpful to know what kind of doctors you are seeing that aarrived at your diagnosis (or not).
I think that you should get your medical records together and see a functional medicine specialist. They are also called integrative physicians. They usually take insurance. You can find one in your metro area using Google. They are MDs with a strong interest in holistic medicine. I find that they have a much keener overview of a patient's situation and also far better testing than a traditional MD. I got some of my best help from one.
I have a cane, rolling walker and a wheelchair. My fashion statement changes depending on my mobility issues from day to day. I would rather be safe than take a bad fall. Do I care what other people think about that - no. I also have a permanent handicap sticker for my car.
You might want to think about ordering the book "Fibromyalgia for Dummies." It will give you a comprehensive overview of the complex illness. You can find it online at Amazon. There are a long list of health issues that go along with a diagnosis of FIbromyalgia. Knowledge is power.
Good luck to you, welcome to the board and take care.
My advice - keep pursuing a diagnosis. There is a possibility that at least some of your symptoms are attributable to something more treatable.