Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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sparklyavf 10/21/2008

HI,
I was wondering if other ppl has experienced really large weight gain with fibro. I was about 20-30 kg's overweight in 2006 (had fibro for the 3 years previous). Lost all of it in 2007 when I had a year pretty much in remission. This year I have had 2 really huge flares and spent most of 2008 quite sick. I have put all that weight back on. The endep (amitriptiline) has massive weight gain listed on some sites as a side effect. But not being able to move, being bored and wanting a lot of chocolate has a lot to do with it too. Anyone seen a correlation between their fibro and their weight.

Looking forward to your replies,
Coralie XXX

deleted_user 10/21/2008

Yes yes and YES!! I take both elavil and neurontin and they both give you weight gain. I was just thinking yesterday whats worse being fat or the pain?? I think I need to choose before I blow up like a ballon!!

deleted_user 10/21/2008

Complete opposite for me, I am on Cymbalta and Nuerotin and in the last year I have lost almost 60lbs. I haven't been able to do that with dieting or whatever, and then along can all of this, I really started feeling bad about then too. I just don't have any appetite, I have to force myself to eat< I don't know if its pain meds or what that have caused me to lose my appetite. I needed to lose this weight and I need to lose about 20 more but that is it, and then what, shrink? Anyone had this happen to them?

deleted_user 10/21/2008

I just continue to shrink...soon I do beleive I shal disappear. No weight gain here.

sparklyavf 10/21/2008

hah! I wish I had that problem lol But I do understand it can be very annoying also and for some people gaining weight can be just as hard as losing it. I just think the weight gain .. it goes with the fat and lazy perception that society has with overweight persons. Also people expect people who are seriously ill to be somewhat frail etc etc. meh this disease sucks doesn't it.

Coralie XXX

deleted_user 10/21/2008

medicines and stress eating have both caused me to gain a few. nothing dramatic though. i've got irritable bowel that keeps me "in check" with over-eating. haha.

deleted_user 10/21/2008

FMS and concurrent anorexia: Anti-Deps make me fatas a balloon, even when do not eat.
No cake or chocolate or white bread for me.
And no anti-deps for depression-diazepams/
therapy. Jessica xxx

deleted_user 10/21/2008

And I recently removed Neurontin from my fix-it list...............water-retention,nausua,
depression.
yeah F7*ck Neurontin-Clonazapam 2x week and
viagara 2x a week better all around with
supported therapy. Jessica xxx

DevonB 10/21/2008

I am definately overweight. Being in pain, and not being able to move, as well as the exhaustion doesn't promote healthy weight!

Mind you, I also eat to comfort myself...so that may explain alot!

I'm changing my eating and we'll see how that works!

deleted_user 10/21/2008

Lord, YES. It drives me insane, too - I workout very faithfully, and I eat pretty well, but it doesn't seem to matter WHAT I do.

I'm trying to cut out all sugar and flour (HA) - will let ya'll know if that changes anything.

deleted_user 10/21/2008

Well thank heavens!!!I thought it was just me,I have been put on amitriptyline 150mg and much as I try I can not shift it AAAAARRRGGGHHHHHHHHHHH!!!!!
I hate it as it took me a good while to get down to a lovely size and whamo here I am again having to buy big girl clothes,I do walk and I have done the eating properly etc......As if FM isn't more than enough to cope with huh WE ARE SO LUCKY.......(NOT!!)

Trish50 10/21/2008

oh boy yes.. for me its from lack of exericise and insulin.. dont know if tramadol puts on weight.. but .. man.. i packed on like 30bls or so.. but was too skinny before. but still dont like the extra weight gain.. especially in the belly... a big uhhggggg on that.. im on a diabetic diet so its not what im eating.. drives me nuts.. sigh.. tried to start walking.. and found out the hard way.. hip was on fire for days.. :(

deleted_user 10/21/2008

yes....it sucks

PeaceN2You 10/21/2008

Not me - I've been on amitryptilene for more years than I can remember and never done anything more than my usual 20 lb "yo yo" up and down, which I've done all my adult life.

Since hubby had his gastric bypass last year, I just eat what he eats and I've lost more than 15 lbs - back down to my Weight Watchers goal from years ago, and still dropping. I eat pretty much anything I want, any time I want, but I can't eat more than a few bites of anything now so I don't eat MUCH of anything.

deleted_user 10/21/2008

Nope, I have never had a weight issue was always able to eat what I wanted and stay at a good weight for my height, I am tall. However since I have read alot about nutrition and fibro I have cut way down on processed foods. The biggest change I have noticed is my lack of muscle mass do to my activity level dropping. I know that it is important to do weight baring exercising but I cannot seem to handle the pain. So I just do walking for exercise.

deleted_user 10/21/2008

Yes and no. I've had a weight problem for as long as I can remember. I was doing really well, lost 15 lbs., went on Lyrica and gained 6 lbs. in 5 days and unfortunately, it hasn't stopped. I stopped taking Lyrica for many reasons and now I'm freaking out because I just started Elavil and am worried about gaining even more.

I know part of my problem is the inactivity due to pain and the fact that I have a sweet tooth/carb craving that kicks into high gear during a flare.

I'd really like to get things under control because it's such an added burden...literally and figuratively.

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