Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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PegZo 07/20/2012

I am a grandma again only this time it is with my daughter. Mom and baby are fine but need some help. I think I can help but when I do I suffer. Staying up past my bedtime is not a good thing. I am a walking zombie and the next day I suffer from so much pain. Medications are not good for me because of the side effects and I am so tired of dealing with this condition. I think the only thing that keeps me going is knowing that there are so many people out there who are suffering so much more then I am.
How do we accept this new life we are given? How do we bury the person we were and get on with life in this handicapped body? This is so hard!

cristledreamz 07/20/2012

i too suffer greatly if i miss any sleep. i don't have the answer to any of your questions, but wanted to let you know you're not alone. it sucks and we do the best we can. get as much sleep as you can and hang in there!

PeaceN2You 07/20/2012

Congratulations! Boy or girl?

Sorry it's so hard for you. I hope you can find ways to help out and spend time without wearing yourself out too much.

Sometimes we have to do the things that mean the most to us and just accept that we will pay later.

Enjoy...they grow up quickly!

deleted_user 07/21/2012

I don't look at it as burying the pre-fibro me, but am grateful I had those years.

The fibro me I had to learn to love. I learned to love her because I discovered I actually had perseverance, and strength in the face of unconquerable odds. And I love her because she became the little engine that could, and continues to maximize joy. Fibro has helped me shift focus to my character and inner strengths.

We find acceptance of our condition because acceptance is the doorway to getting on with being the best we can be. We are now like mountain climbers- just making it through a day requires a lot of courage and strength and determination. It also requires technique.

Living w/ fibro should be an Olympic event.

marsharebel 07/21/2012

Ain't that the truth.

skinnybinny 07/21/2012

Congrats on your new grand baby!

DreamWishes 07/22/2012

3-4 years later,I still get depressed over this.I'm not sure I'll ever except my fibro diagnosis.I just hope on the bad days and enjoy my good days.Congrats on the grandbaby.Only do what you feel your body can handle I'm sure momma and baby will understand.

camas 07/22/2012

I have 7 grandkids and two on the way. I've been in the delivery room during all the births and it really takes the stuffing out of me. Like you I cannot function the next day if I don't get sleep, thankfully the moms and dads understand and let me be for 24 hours after the births.

Then I try to help out for a week, make some frozen foods and go back to my own home and rest, rest and rest some more.

I still have moments of missing all the activities I did preFM and it has been four years, just comes with being human.

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