Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Micki55555 09/19/2007

A fibro study is being carried on in various areas throughout the US.. to qualify you do have to fill out a pre qualifying screening form..then they ask you which location you would like to go to...
It is so exciting to see all the research now being done in this area..
WE ARE GETTING THERE.
For information about the study:
www.myfibrostudy,com

deleted_user 09/19/2007

I tried but no study near me. Glad research being done. Maybe we will have better meds.

Zzzzowl 09/19/2007

Would you keep us in the UK informed of the study being done over there, would appreciate it, thank you hugs Owlxx

nik2 09/19/2007

I've tried a couple of times to get into a study. They take my infor and tell me they will notify me and I never hear from them again. When I told my RA about they never contact me again she wondered why. I was thinking it may be because I'm on pain meds that might be hard to get me off of. When they do these studies they want you to take their meds. It's just a thought, I really don't understand why they never call again.

deleted_user 09/19/2007

:( Boo.. they even have a study going on here. I wonder what part disqualified me.... the thyroid part maybe (I said no) or maybe the sleep apnea?
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Were sorry, but at this time you do not qualify for this study.

We appreciate your time and interest.

For more information about Fibromyalgia, you may wish to visit the
National Fibromyalgia Associations website www.fmaware.org.

Micki55555 09/19/2007

we kind of have this figured out to possibly three reasons for exclusions..they dont want people who are overweight, have other medical conditions that might complicate findings.. and age may be a factor,,,also , of course if your area is filled up you wont be taken..they rejected me too but took a friend of mine..

deleted_user 09/20/2007

I can never get into one of those studies. They always reject me. Not fair.

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