Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Fibro~Denial or Lupus...

mommies4
mommies4
Hello everyone !

I'm not new to DS,I do alot of reading hear and very little writing. Today I wait on my Labs to come back for a DS DNA test I had pulled on Fri. from my oncologist whom I was sent to due to a high WBC ongoing now for the past 10 yrs. I was told by a Rheumy 3 yrs ago I had Fibro, OK , however I don't think all my medical issues are just Fibro that or I truely am in denial.

My question today is can Fibro only attact one side of the body at one time.It does move around my body,( the pain,muscle weakness,ect.. ) but the nagging pain in my left leg never goes away sometimes it will be that leg and my right knee at the same time or knee and ankle right side w/ the left leg but mainly it's my whole left side arm and leg.

It's enoough to truly drive a person CRAZY ! & yes I too have been told not in so many words you got it I'm crazy it's my brain transmitters...

this has all been over 11 yrs of this and not all at the same time with the last 4 yrs really getting worse.. I also have all the other goodies that come along w/ this unfolding crazy~ness Fatigue,weakness,joint pain,swelling,the list goes on.... I was hoping that someone who deals with this on a daily could help me welll ... seem not so crazy , is it me overthinking or could this be more then just Fibro ???

In Advance I just wanna say ThankYou for taking the time to read and poss. shed some light for me !

BE WELL ! ANGIE
deleted_user
deleted_user
My right side is much more affected from the fibro but I also have arthritis with it so not sure which is what half the time. Aww, the pleasures of knowing every joint and muscle in our bodies!
countr
countr
When my CFS and fibro first became severe, it affected primarily my right side. It contiuned to affect the right side, drag the right leg, for years. Then it left the right side. My last severe flare up hit the left side just like it had hit the right side before. When my daughter first became ill with fibro it affected her right side, just as it had for me. I know of others on here that have asked I think the similiar question, and alot of us responded saying that it is primarily one sided. It's ok to think that all of your problems might not be fibro because usually when you have one autoimmune disease, you have several. Hang in there and welcome to the group. We are here to help in any way we can.
aprilraven
aprilraven
I was dx'd with fibro nearly 12 years ago. A little over 2 years ago, I developed some new symptoms so I had some bloodwork and xrays done and was referred to a rheumie. She said based on my xrays and bloodwork that I had a type of spondylarthritis and began treating me for it.

Well, those symptoms got a lot worse this summer and so I got another xray that showed further deterioration and was referred to an orthopedic doctor. They didn't help much so I got another referral to yet another rheumie (I don't like most rheumies). She didn't help much and was rather dismissive.

As I became more and more disabled, I finally did a lot of research and found a local rheumie that was very highly regarded by patients and set-up an appointment asap. I finally have answers - rheumatoid arthritis - and am finally receiving the appropriate treatment.

My point in sharing my story is that if you have doubts, please try to find answers because not everything is just fibro related and you won't know unless you question it.