Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Your husband is lucky to have you!
Glad that you are coping better.
I totally agree with Lady, communication is HUGE in any relationship, but especially when there is illness. It takes patience, understanding, commitment and love. I would look for a support group in your area for care givers for people with fibro or chronic pain, or maybe even just care givers in general. Having people who can relate and understand can make things a bit easier and less stressful.
I have to say I was kind of amazed at your post because my hubby and I had a VERY similar conversation last week. He had said he missed the person I used to be, before the pain and fatigue and anxiety. But he also said that even if he had known he wouldn't have changed his mind. It was good to hear.
Just keep communicating and keep reminding your husband that you love him and you're behind him 100%. And be sure to keep visiting us here!
Both my hubby and I could look at my Fibro and say, wow, we have a 25% chance at making this work.
We also have two kiddos with autism/adhd & SPD which according to those stats, we only have a 20% chance at marriage survival.
Toss in money issues, house issues, car issues, etc..that list is endless.
But neither one of us look at the stats. We just look to each other and our faith. We both give our 100% each day and are quick to forgive. We know the odds are stacked against us so if one of us is having a difficult day(s), then we just let it slide. We know that the person we love is struggling, so we make the extra effort to make it better in the best way we can.
So now, the only number I'm concerned with is my 100% I'm putting in. And just like anything else in my life, that is what makes me happy. When I can crawl into bed at night knowing I did all I could to make the day a good one for my family, then I can rest w/out regret.
And I got really really lucky in the hubster department, because my hubby feels the same way I do about it all.
Your hubby sounds lucky to have you. I'm sure it's hard for a guy to open up about how he feels about it all, especially in therapy. Maybe you could start going yourself if you think it will help you. Guys tend to have that inner need to fix things. And I've learned that they struggle greater with the stress of not being able to fix things on their own more so than we women do. We just axe it for the most part. For them, it runs deeper.
So knowing he has a disorder than is not able to be fixed is a struggle beyond what we can imagine. Not to mention, the struggles of earning money, taking care of the home, family, etc.
I can only encourage you to be his sounding board/best friend he needs. In time, he will either figure out how to cope or will follow you to therapy.
For the most part we have had an amazing marriage. I have never complained about our problems to others, even my closest friends. He is usually understanding of my health problems, but sometimes he isn't.
In all our years together, recently we have actually talked about separation, even divorce. But we're still fighting for our marriage. Even through our problems, I realize what an amazing, supportive man I am with.
He has agreed to go to counseling, and we are seeing a therapist, and both seem to be getting a lot out of it. I am so hopeful, and dare I say confident, that we will get through this, and go on to have a long, wonderful life together.
I just posted a post called "Suzy Sunshine's Rainy Day". See, even when I pronounce that I am not putting on my "sunshine face" for anybody, I am here to say, this is not a "face". These are my genuine feelings.
The other half is PRACTICE.
21 years in, and yes, I own Marriage for dummies. Also COmmunication for dummies. And I've learned to let hubby have his Me Time (since I'm the "sick" one) and he's learned that jsut b/c I'm "sick" doesn' tmeant I'm "useless"----he can still come to me, just he has to remember I can't take on as much as I once could.
It's a balancing act, there's rough patches, but here's the thing.... who IS "what they thought they'd be" 5, 10, 20 years later? Nobody I know in my life. Things happen, life happens, dreams change, and sometimes, it is so nice to just snuggle up and watch TV for an hour.... small thing... but oh, how large the importance of that quiet hour of "us"!
Good luck, and I agree with others----it's so much about the willingness.
This now my husband asked me what I wanted for lunch. He's retired, too, so we go to lunch frequently. Also, with my latest foot problems, I'm even less inclined to cook!
So I mentioned this place we'd been talking about going. He asked me if I wanted to do it, and I said, " I guess I can make myself do it." His reply to that was, "everybody has to make themselves do things."
That just really hit me wrong today! I said, "yeah, but everybody doesn't fight through 24 hour pain on a daily basis." I just felt like his response was downplaying what I've been going through. I know what he said is true, most people do have to make themselves do things. But you all, more than any other people, understand the difference when you're fighting chronic pain. I just feel like this painful struggle that's been going on for weeks has wrung out of me most of my happy and positive feelings.
Sorry if I hijacked the thread. Just weighing in on marriage and my current struggles.