I'm sorry, Shakota. I hope you'll feel better after the holidays and some of your energy can return. It's been a crazy year for me and I feel like I can't do as much as I'd like, my pain and fatigue is higher. But so much has happened this year, it's no wonder. Let's hope 2017 will be a better year :)

My fatigue is epic this year, and I am paying for pushing through it, as you noted, Shakota.... Prayers for healing and better year ahead for you:-)

I do understand about fatigue. I have MS and my fatigue gets awful. My daughter has fibro. Her fatigue is so bad that she will actually fall asleep in the middle of a conversation. Her doctor prescribed Adderall and it has helped her so much. I do not know if medication can be an option for you but maybe tell your doctor and see what he says about it. I hope it will get better for you.

I'm very sorry to hear that your are having such a hard time. I've been feeling fatigued lately also so do feel your pain. I hope that you find some relief soon.

Thanks guys. Sometimes I just have to let out a cry in the darkness. Feels good I can rely on your support!

I was thinking about you last night when I couldn't sleep. I was hoping you'd get some good news on the Christmas front, and I'm delighted that you did!

I think all of us fibromites need to buy a big complex somewhere with agreeable weather. It would be much more fun to go on walks with understanding people. Even in my late 20s I'm almost never going anywhere, and it's quite shocking if I get in after dark these days. I'm sorry you're feeling this way - I know what you mean and what a downer the feeling can be.

Take care, friend, and I'm sure you'll have a great Christmas with the grandkids. :)

Sorry you are feeling this way at Christmas time Hope for better day on Christmas!
Even when we rest still might not help. But its worth a try to rest an see how you feel for that special day. Take care! And merry Christmas.

Yes, I can't drive after dark (eyes just don't get enough light to see) but a younger friend drove us to the movies (6 months? ago) and wow, it was a revelation to go to an evening show, with younger, livelier folks milling around in the theater. And to come home in the dark! a thrill.

What I'm looking for in my fatigue post are hints of how to tweak everything in order to be more functional. There's pacing, meditation, relaxation, emotions, stimulant meds, rest, treating pain. A host of options to try. So, I'll go for some of them. Thanks for your help!

I realized I have a very precarious balance of energy. More activity, up to an obscure point, will lead to more energy. But the slightest unkindness to myself and ignoring bodily demands for rest have brutal repercussions. Every time I incorporate frequent time on the exercise bike for myself, I start feeling loads better on the energy front. Then I manage to get it into my head that rest will end up undermining the exercise regimen that I attribute my increased energy to.

So I know for me, the answer to getting more energy is being more physically active, but it's an incredibly fine line, and the best way is to build up that exercise very, very slowly. Haven't quite gotten that last part down, but I'm working on it

I can only speak for myself, of course. Especially if different medical conditions are also throwing in their opinion about how much/little movement is desirable.

Those are just some rambles from me. :)

Your rambles are much appreciated. Probably how I react differently to exercise one day from another is due to perhaps, fighting off a sub-clinical virus, or some emotional weighty stuff.

I am going to give in to a nap after lunch. it's pleasurable and seems necessary.

Another thing: I am going to focus on only two things: getting out in the morning to exercise/errands and in the afternoon to write or do languages. All other minutae of daily life can be squeezed in between the two big aims.

がんばります！(Ganbarimasu!)

I agree it a fine line between doing things that help with your energy level and overdoing it. Depression also plays a big part in our energy level and often we aren't aware of how depressed we are. Do you take Elavil or anything to help you sleep ? Not getting enough REM sleep is a trade mark of fibro and that leaves you more exhausted than you were when you went to bed.

Hi Shakota. Yes, energy is a big one on the fibro list. I was diagnosed with fibromyalgia and chronic fatigue as well, but when I was diagnosed the pain from the fibro was severe, so I just focused on relieving the fibro symptoms. Some of the things that help me with me energy levels are pacing, vitamin d supplementation, ferrochel iron supplement (I have anemia), drinking two 16 ounce green greens a day with various fruits, specialized vitamin packs (enhanced with various supplements that target inflammation), essential oils, gentle exercise, prayer and my diet. My diet is one of the main factors that have helped me with the fibro and the energy levels. I follow the paleo diet and it helps a lot, you may want to consider switching to a low-carb diet if you haven't done so already. A book that helped to change my life is called the Wahls Protocol. It was written by a medical doctor by the name of Terry Wahls. She reveresed her stage 3 multiple sclerosis by following protocol.

I am still struggling to find an answer to my sleep disorder (alpha-eeg sleep anomaly). My mornings are still challenging for me, because of feeling unrefreshed. I pray you feel better soon. Best Wishes.

I have a lot of fatigue more than ever. If I fix my daughter toast I exhausted and don't feel good and have to lay down. After I shower I have lay down. After eat meal U eat I have to lay down. I'm in so much pain, I'm exhausted you name it. My body feels heavy when I wake up. My legs feel heavy when I walk. I barely stand to get anything from kitchen cabinet. I use a walker. I can walker using it alot I wheel myself around the kitchen while seated. I'm only 37 and barely take care of my basic need. I have to get help to Dr Appt etc. I have balance issues. I have horrible pain, burning, and tingling all over my body. I have migraines daily and sharp pain when turn my head.. I have pain in both my hand all my joints are stiff and painful and tingling and burning in my left thumb and arm. I have alot going on. Everything is being clustered to fibromyalgia pain and migraines and my pain is not managed well. I have 3 kids 3,7,14 that have to see their mom in horrible pain everyday and barely walk around the house. Only thing keep me sane is listening to my inspirational music all day and scriptures and it's still hard. Right now my left shoulder hurt so bad and left arm is burning like someone lit the whole thing on fire literally call the doctor yes9told me to put ice on it that Tylenol and Aleve and continue with my gabapentin. I have been. Then coming in today for re evaluate. I hope they do something because my left shoulder is definitely not fibromyalgia pain. Leave the doctor in horrible pain 8-10 all the time with no resolve. Frustrating. Praying for healing.

Wow, Kikirae, you are severely affected. I hope you get more relief. Sounds like you could stand a stronger med or two than you're taking.
Let us know how it goes. I'm asking for some relief for you.