Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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curlykraut 10/18/2010

I am trying to get my dr to approve the nutritional supplement I have been taking for a year, in order to have insurance possibly add it to our deductible at least! My dr seems to think it might be easier to have it on the benefit account where you have money set aside for it.

Why do I feel so blue??? I think it is just the relization that my life is determined (outcome) by this blasted illness I have. I am hindered and propelled by the wrath of the illness. Reliv does help, but it presents another delemia, money. It is costly, and I don't think that it is going to be recognized by my insurance, other than adding to our yearly deductible, which may in the long run help some.

I work so little anymore (four days a month), that the cost of it is very daunting. My husband and I have our own separate accounts, I am responsible for my dr bills and my expenses. He tends to believe if you are sick, get over it! Dr's are only there to take your money and pay their car/house payment. I am at the mercy of this horrible monster (fibro. not my husband). Life sucks in a nutshell. This isn't what I signed up for and I have a hard time looking a day ahead and not feeling like I am sinking into a black hole.

I am only posting this, because I know there are others out there that feel the way I do, or this forum wouldn't exist. Is there hope in tomorrow or just more hurt and emotional strain? I am also having a horrible issue with my daughter who is 14, and she feels like I am out of touch with her and her needs basically. So I feel like I am failing as a wife, mother, and human being, I can't contribute to society or my home life. What a draining post, sorry, no good news.

deleted_user 10/18/2010

I wish there was something I could say or do to make things better.

We just have to take it one day at a time sometimes 5mins at a time.

I do believe there is hope. There is so much going on with research right now but it's a slow process.

Sending Hugs and Prayers that things get better for you.

horseluvnhoosier 10/18/2010

It seems like every time I go to the doctor, I am depressed afterwards too. Hang in there. It will seem better tomorrow.

deleted_user 10/18/2010

I had tears coming down my face as I read your posting. I guess cause it is so familar. I think when we go to the doctor we are often depressed afterwards. If your visits are like mine it is more of the same, more scripts and see ya in 6-8 weeks. No news on research or advancements in the medical scenario. The only advise I have is to take one day at a time and I do believe there is hope. We just have to keep looking for it. I pray that you start feeling better very soon. and I am sending HUGS your way!

curlykraut 10/18/2010

Thanks guys I needed to hear all your encouragement. This place is so safe and comforting. I hope I can be there for all of you some day, in return, if I ever get my act toghether.

deleted_user 10/18/2010

I am sorry your going through this. Wish i had some good advice,,

Maybe could call the insurance company yourself and explain what you said to them and how it is helping you and see if you can get them to cover the nutritional supplements. Or call the manufacturer of the products and see if they can assist in the costs ?

I believe there is hope and believe in time they will get this figured out and hopefully a cure. Hang in there..

take care everyone
gentle hugs

sunsetzzs 10/18/2010

I'm sorry that you are having one of those days. I have them too. This illness has robbed us of so much that it can get down right depressing at times, and rightly so. I believe that there is always hope. I've known people to feel better and stay away from flares. All I can do is take one day at a time and try to accomplish or do what I can. Some days, that's not much, but it is 100%. And other days I get more done, still 100%, but I have less pain/fatigue.

I always remind myself that this too shall pass. Hugs for you and prayers that all of us here will be better.

deleted_user 10/18/2010

this disease is enough to make anyone blue, when my family found out i had it i got a lot of sympathy, i am one of the lucky ones in that my family is very supportive, my hubby is disabled and also has fibro so he understands what i am gong through, i wish i could offer some advice, but will offer support and hugs, you aren't alone in this we are all here with you
gentle hugs
Andrea

deleted_user 10/19/2010

HUGS

I hear ya.... there are days when I just want to give up and die... but then there are days that I feel good and have HOPE.

I have also been having financial problems due to having to go from full time to part time.

It was causing me to sink deeper into a black hole....until I started really focusing on old advice...take one day at a time.... and just like Maryca said..sometimes 5 min at a time.

Life can be overwhelming especially in this economy. So I try to look for the daily blessings that I already have. I try to surround myself with positive things and thoughts. I also try to make sure that I do at least one nice thing for myself and others every day.

I hope you feel better soon, HUGS HUGS HUGS

deleted_user 10/19/2010

We all understand. We have all been there. Dont give up! In the end, you are worth the fight (well at least that is what I keep telling myself). I do not have any real advice to offer you, but I do have an ear to listen and a shoulder to cry on. Are you on an antidepressant or antianxity med? One might help, might not, but worth a try.

deleted_user 10/19/2010

Yes, we are here for you.

photochick 10/19/2010

I just recently went through this...
hang in there, good news is always around the corner :)

deleted_user 12/13/2010

I'm sorry you are so discouraged. I've been taking reliv, and it has helped me. It has even helped my husband. He had an irregular heartbeat which dissapeared after three weeks on Reliv. One thing that you can do to make the product less expensive is to become a distributor. Then you can buy the product from the company at a significant discount. You can also add to your income by selling some to other people who might need something to help with thier physical problems.

I just started distributing myself, and if you have any questions or want any help I would be happy to talk to you about it.

I really hope you feel better and are encouraged this Christmas.

Katie

CarrieinSK 12/13/2010

I'm sorry you are feeling so blue. I hope you can get the cost covered or sign up to sell it yourself.

5-HTP is a great supplement to add as it helps with depression, sleep, anxiety and more. You can get it at any health food store.

deleted_user 12/13/2010

I don't think you're going to get your doctor to support you in taking supplements so if you want to do it, you're going to have to absorb the cost yourself. Once you start to feel better, you will begin to break even as you'll be going to the doctor less--at least that's what happened in my case.

Vitacost.com has a very high quality pharmaceutical-grade supplements called NSI that we've done very well with. Vitacost.com also sells most other major brands at a deep discount.

LeoX3 12/13/2010

THere's always hope:-) Just hard to see sometimes. You're not failing, I promise,. When I feel like this it really does seem like the end of all good things. But then I get a better day, and I have to remember that the only real failure is giving up. And obviously you haven't!

Hugs, and smiles,
Leo

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