Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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tawny2nat 09/17/2012

i am 29 and have had FM for 7 yrs now but over this last wk i have been getting a numbness in my face and twitching in my lip also a numbness tingling down my left arm feels like when your foot goes to sleep that thick numb feeling even though you can feel your touching it, i am concerned as my mother and grandad got MS at my age starting with the numbness in left arm and face should oi be worried and go see a doctor

mixedupmelly 09/17/2012

I'm working with a neuro over the same thing. He thinks I might have one or both. He says it's c fiber neuropathy but he doesn't know what's causing it yet. Which is frustrating because we go to docs because they are supposed to know what they are doing. But if you think about it, why do they call it practicing medicine when they've already got their license?
It's scary and frustrating not knowing what's going on. My dad had fibro and a tbi and he couldn't have a MRI or cat scan to confirm ms (metal in his head) my granmom had parkensons and it scared the daylights out of me when the tremors started.
My suggestion is to let your doc know what's going on. I'm finding the more I know about what's going on in my body, the less fear I have. It doesn't help with the pain, but it helps me cope with it.

moonbeams 09/17/2012

I've been wondering the same thing as well. I don't have consistent numbness, but will get it in my lips and side of my face periodically. Usually it starts with hot tingles on one side of my lips, then turns numb a few seconds later, spreading towards my cheek.

I've also been told that heat triggers MS and back before MRIs or
CAT scans they would put you in a hot bath to diagnose MS. Well, that's me. Unlike most FM people, I cannot handle heat over my entire body. I also cannot handle being warm. I would rather be cool and stiff than warm and nauseous and dizzy.

I've blamed all my symptoms on FM and people with FM never being the same for years. But as I get older, the new symptoms that keep coming up seem to lean towards MS. However, I still have some classic FM symptoms as well. It's weird, isn't it??

Anyway, I'm watching what others say about this to see if it could help me as well! I do agree with Mixed, telling your dr all of your symptoms is key.

beclinkay 09/17/2012

I'm sorry you are having these symptoms. Yes, please see your doctor.
I was just tested for MS in August as I was having strange symptoms as well. The MRI was clear and my doctor has stated he thinks my fibro is getting worse, and that it's not MS.
I am unsteady on stairs, have weakness in my limbs, eye problems, and skin itchiness. And other things that I can't remember at the moment. These can be MS, but fibro has many of the same symptoms. It seems we go to the doctor a lot, doesn't it?

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