Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
When I started my cancer treatment in June 2013 the oncologist said sometimes fibro patients have less fibro pain. I was too busy with chemo, radiation and herceptin infusions til 8/2014 to think about it. Then started afib in September, so fibo took back burner.
I now realized she was right! At first I just thought pain and fatigue was the just getting over the treatments and 3 minor surgeries. No it was a major flare which has subsided into just my daily level of fibro.
Was it the steroids? Chemicals? Yuk or the central nervous system too busy else where? There is something to it, mind you not a walk in the park but I managed a better exercise routine and asked for little help. I did not expect much from myself which may have played a role. There has to be sometning to it as oncologist knew it might happen but not why.
Any thoughts?
laurab
I now realized she was right! At first I just thought pain and fatigue was the just getting over the treatments and 3 minor surgeries. No it was a major flare which has subsided into just my daily level of fibro.
Was it the steroids? Chemicals? Yuk or the central nervous system too busy else where? There is something to it, mind you not a walk in the park but I managed a better exercise routine and asked for little help. I did not expect much from myself which may have played a role. There has to be sometning to it as oncologist knew it might happen but not why.
Any thoughts?
laurab
I hope your treatment was 100% successful and continues to be so.
laurab
laurab~~
Please read about autoimmune disease such as lupus and arthritis that are but fibro is not.
One can google the words fibro and autoimmune that state fibro is not an autoimmine disease and read all the articles.
I'm in touch with a few researchers and the jury is very much still out on immune system dysfunction in fibromyalgia.
Answers not available yet but someday the immune system has to play a part. IMO
laurab~~
You should let your doc or rheumatologist about how to react to chemo.
There is also seronegative versions of autoimmune disease, which is what I am presumed to have, but different doctors think different things. I'm happy though one rheumy did treat me with for lupus and it made a huge difference.
The immune system is really astoundingly complex. Sometimes I think even doctors don't that much about it. They don't even pretend to know if they know all the autoantibodies that exist. Then there parts of the immune system called cytokines with may be involved with fibro and CFS.
And Laura, I was trying to say you should let your rheumy know about your reaction to chemo.