Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
for 5/6 weeks now the bladder has been a real problem..got to empty bladder many times a day.but the big problem is been out and about..its wants to come on fast in needing to go.at shopping centers need to know where the mens is .its like mins to get there.the pain is horrid just can not hold.on long trips i was using pads they did not work to well.so now for out and about and at night i started using tena slips.feels like i am degraded.but seem to work a lot better..still waiting on call up to hospital to see a rheumatogist to see if i have fibro...brother and sister have it..i am always very tired and no matter what i do its hard and at night the muscles all pulsate and racing heart..with fibro can the bladder give hell to what i am saying if so is that long term..i had lots of dizzys some time back.they gave me hell.but now seem to come back only a little.when i see the rheumo what will he /she do for testing..the trip is long for the hospital and really dont want to use a diaper knowing that if they say strip down i would be degraded....any and all help would be great..thanks
I have the same thing. For years, I thought I had interstitial cystitis, which is an inflammation of the lining of the bladder, the diagnosis i got from the urologist several years ago. I took two medications for years. Then, suddenly, I got a notice that I had to see a new urologist, who, after some painful testing, announced that I did NOT have IC at all.
So they took away one of the medications and I doubled the other. It doesn't work as well as the first treatments, but I can stand it, if I drop whatever I'm doing and lie down.
I totally understand the pain you are in. It's horrible. I'd suggest you skip the rheumy and get to the urologist. They can confirm whatever it is that is causing your problem.
As far as I'm concerned, FMS causes pain all over your body, no telling where next. I've had lots of problems in the last few months with my entire belly. My bladder, stomach and intestines all hurt at various times, all the way up to my diaphragm. It's just horrible. Honestly, I don't know how I live with this.
My other advice, if you have not been diagnosed, get to someone and have that diagnosis confirmed. Or not. If it is FMS, there are medications that can help with pain and sleep, it is in NOT, there is certainly something wrong and you need to know what it is.