Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
carmelb
Hi all
I have been wanting to post here for a while but I feel really embarrassed because I dont participate enough. I check in and read through the threads every few days, I get great comfort from reading your posts, but often I just feel so overwhelmed with fatigue I cant find the extra energy to write anything. I hope you understand.
I want to ask advice from people who actually have Fibro, rather than people who dont - I have a big dilemma about my future and I dont know what to do.
I posted last year about the huge life change I went through, age 51, leaving behind life on a disability pension back in NZ after I was offered a job and an apartment rental here in Germany by a friend, and the opportunity to earn my own income again by teaching English here part time. When I arrived here, my friend had changed her mind about the job offer, but I was lucky enough to make the right contacts and find my own clients. I always knew it would be a risk, but I wanted to give it my best shot - to actually earn some money and try a new life before I became too old or too sick.
I also felt that there would be better treatment for Fibro in this country - with the language barrier and having transport issues- I havent been able to find the right doctor yet.
Up until now, despite having a series of viruses over winter, things went better than I had ever dared to hope. Within a short time I had a steady clientele of corporates who hired me as a Business Trainer, and I could work my own hours around being able to rest during the day when the pain and fatigue got too much. The hourly rate is good here for trainers with the right qualifications, and I started to feel I had successfully carved out a niche in this pretty, semi-rural region of south Germany. The new language has been a challenge, but my German is getting better steadily, even if it makes my brain hurt some days!
Well, after all this success, things have gone off the rails a little lately, and I feel like my Fibro body has let me down again :( I can see why and when the balance tipped and I went into a flare after feeling like things were under control for the past 6 months or so.
Up until mid-March I was working around 25 hours a week (if you factor in travel time on public transport it was around 30). I felt like this was going to be sustainable income wise since my rent was on the cheaper side and with having no kids to take care of now, I can manage with buying not so much food and keeping my living costs low.(Food is much much cheaper here than in NZ, btw).
Anyway, a few things changed recently. Seeing as I was coping so well and developing so much confidence in my teaching, I accepted a very interesting contract as a lecturer in the local business school (a very respected campus) two full mornings each week,which I felt would be a great career move, plus I was offered a contract with Deutsches Telekom to run a 12 week training programme for their technicians. When I get offered interesting work, I find it very difficult to turn down and I usually love the chance to get more experience working for different clients.
At the same time my so called friend' has decided to put my rent up on my little apartment twice lately (which I have just discovered is not actually legal under German tenancy law) and I got a big bill from the health insurance here for back payments they hadnt previously charged me for.
You can see why I felt like I had to say yes to the new work contracts and even with working these extra hours things are still tight financially. The worst thing though is that my body has let me down badly - three weeks into the new regime (which involves getting out of bed at 6am a few mornings each week) and I feel like Im dying.
To make things worse Ive been getting very nasty emails from my ex husband in NZ demanding more money for the support of our teenage daughter. By the way, when I was the primary caregiver he could never front up with more than the bare minimum of child support, saying he didnt earn enough money.
Now its the other way around, and he is telling me to work harder, and work longer hours to earn more money - how can I tell him I am already doing the best I can?
Im sorry to sound so down, but I felt such a sense of achievement and success after reaching my goal of returning to work, earning my own money again and not being dependant on disability any longer. I felt like I had to up my hours because my living costs were going up, but now I dont know how I can carry on at this pace. By Friday evening I feel like vomiting with the extreme fatigue and migraines - and does anyone know the feeling of being so exhausted that they can not even sleep?
Lately I have spent all weekend in bed, in pain all over, and I have no energy for any kind of exercise or social life whatsoever. This is not what I wanted for my new life. I often feel lonely and lost without my family and support network here too. I cant afford to buy a car and the public transport in this small village is terrible!
Now I also feel like Im going to have to look for a new and cheaper apartment too since my friend wants to raise the rent and I dont feel very welcome here any more. Even if I refuse to pay the extra charges (as I am entitled to within law) it would ruin the friendship and feel incredibly awkward since we live in the same house (the apartment is upstairs). I just feel so sad and overwhelmed and trapped on a wheel of having to keep working these extra hours to pay the essential bills. A big part of me just wants to give up now, pay off my bills here, end my contracts, and somehow find the money to buy a ticket back to NZ. I miss my daughters dreadfully and feel guilty about leaving my ageing parents (I used to help them a lot with their property back in NZ).
I dont know what to do..whatever choice I make has huge implications and I don't know which is the more sustainable or even sensible. I feel like a failure, and I hate the power that Fibro has over me to keep on coming back and ruining every achievement I have attained, and sapping every last bit of energy I fought hard to retrieve. Of course I keep getting well meaning people telling me that if I eat the right foods and go to the gym, workout harder, you will push through the Fibro. Of course, why didnt I think of that??
I guess no one can tell me what to do, but I just wanted to share my dilemma and my feeling of hopelessness with the few people in the world who might understand and feel some kind of compassion or empathy. Do I give in or keep fighting? and what is giving in anyway?
I cant seem to make good decisions any more - I am just too exhausted. I dont trust myself any more, my brain feels overwhelmed.
Thanks for reading so far, I dont know what I would do without this group!
I have been wanting to post here for a while but I feel really embarrassed because I dont participate enough. I check in and read through the threads every few days, I get great comfort from reading your posts, but often I just feel so overwhelmed with fatigue I cant find the extra energy to write anything. I hope you understand.
I want to ask advice from people who actually have Fibro, rather than people who dont - I have a big dilemma about my future and I dont know what to do.
I posted last year about the huge life change I went through, age 51, leaving behind life on a disability pension back in NZ after I was offered a job and an apartment rental here in Germany by a friend, and the opportunity to earn my own income again by teaching English here part time. When I arrived here, my friend had changed her mind about the job offer, but I was lucky enough to make the right contacts and find my own clients. I always knew it would be a risk, but I wanted to give it my best shot - to actually earn some money and try a new life before I became too old or too sick.
I also felt that there would be better treatment for Fibro in this country - with the language barrier and having transport issues- I havent been able to find the right doctor yet.
Up until now, despite having a series of viruses over winter, things went better than I had ever dared to hope. Within a short time I had a steady clientele of corporates who hired me as a Business Trainer, and I could work my own hours around being able to rest during the day when the pain and fatigue got too much. The hourly rate is good here for trainers with the right qualifications, and I started to feel I had successfully carved out a niche in this pretty, semi-rural region of south Germany. The new language has been a challenge, but my German is getting better steadily, even if it makes my brain hurt some days!
Well, after all this success, things have gone off the rails a little lately, and I feel like my Fibro body has let me down again :( I can see why and when the balance tipped and I went into a flare after feeling like things were under control for the past 6 months or so.
Up until mid-March I was working around 25 hours a week (if you factor in travel time on public transport it was around 30). I felt like this was going to be sustainable income wise since my rent was on the cheaper side and with having no kids to take care of now, I can manage with buying not so much food and keeping my living costs low.(Food is much much cheaper here than in NZ, btw).
Anyway, a few things changed recently. Seeing as I was coping so well and developing so much confidence in my teaching, I accepted a very interesting contract as a lecturer in the local business school (a very respected campus) two full mornings each week,which I felt would be a great career move, plus I was offered a contract with Deutsches Telekom to run a 12 week training programme for their technicians. When I get offered interesting work, I find it very difficult to turn down and I usually love the chance to get more experience working for different clients.
At the same time my so called friend' has decided to put my rent up on my little apartment twice lately (which I have just discovered is not actually legal under German tenancy law) and I got a big bill from the health insurance here for back payments they hadnt previously charged me for.
You can see why I felt like I had to say yes to the new work contracts and even with working these extra hours things are still tight financially. The worst thing though is that my body has let me down badly - three weeks into the new regime (which involves getting out of bed at 6am a few mornings each week) and I feel like Im dying.
To make things worse Ive been getting very nasty emails from my ex husband in NZ demanding more money for the support of our teenage daughter. By the way, when I was the primary caregiver he could never front up with more than the bare minimum of child support, saying he didnt earn enough money.
Now its the other way around, and he is telling me to work harder, and work longer hours to earn more money - how can I tell him I am already doing the best I can?
Im sorry to sound so down, but I felt such a sense of achievement and success after reaching my goal of returning to work, earning my own money again and not being dependant on disability any longer. I felt like I had to up my hours because my living costs were going up, but now I dont know how I can carry on at this pace. By Friday evening I feel like vomiting with the extreme fatigue and migraines - and does anyone know the feeling of being so exhausted that they can not even sleep?
Lately I have spent all weekend in bed, in pain all over, and I have no energy for any kind of exercise or social life whatsoever. This is not what I wanted for my new life. I often feel lonely and lost without my family and support network here too. I cant afford to buy a car and the public transport in this small village is terrible!
Now I also feel like Im going to have to look for a new and cheaper apartment too since my friend wants to raise the rent and I dont feel very welcome here any more. Even if I refuse to pay the extra charges (as I am entitled to within law) it would ruin the friendship and feel incredibly awkward since we live in the same house (the apartment is upstairs). I just feel so sad and overwhelmed and trapped on a wheel of having to keep working these extra hours to pay the essential bills. A big part of me just wants to give up now, pay off my bills here, end my contracts, and somehow find the money to buy a ticket back to NZ. I miss my daughters dreadfully and feel guilty about leaving my ageing parents (I used to help them a lot with their property back in NZ).
I dont know what to do..whatever choice I make has huge implications and I don't know which is the more sustainable or even sensible. I feel like a failure, and I hate the power that Fibro has over me to keep on coming back and ruining every achievement I have attained, and sapping every last bit of energy I fought hard to retrieve. Of course I keep getting well meaning people telling me that if I eat the right foods and go to the gym, workout harder, you will push through the Fibro. Of course, why didnt I think of that??
I guess no one can tell me what to do, but I just wanted to share my dilemma and my feeling of hopelessness with the few people in the world who might understand and feel some kind of compassion or empathy. Do I give in or keep fighting? and what is giving in anyway?
I cant seem to make good decisions any more - I am just too exhausted. I dont trust myself any more, my brain feels overwhelmed.
Thanks for reading so far, I dont know what I would do without this group!
I can't offer much advice, but I can tell you one thing----sometimes the new life isn't about where we live or what we do, but the things we're thinking and putting value on, if htat makes snese. I'm learnign this in PTSD therapy, btw, so sorry for the pop psychology there....
Just... ask what is your priority. List them all. Rank them. Do it every day for a week---I know my ideas of what's number one change with mood and day sometimes----and see what results, maybe?
(BTW, like that German tenancy law.)
FOr me, I'd be thinking, Hey, this time in Germany gave me some good stuff on my CV, I can take that back to NZ and parlay that into something better than I had before maybe....
It's a big choice no matter what, so maybe find small ones first?
Wish I had more help to offer, but big hugs,
Leo
Think or even write down the pros and cons between NZ and Germany.,
Hope it all works out. I don't think your so called friend is much of a friend if they keep,raising your rent. Did you ask them why?
Good luck.
Leo, you are right about getting good stuff on my CV here, and Ive kept in touch with the academic staff of the Uni where I trained back in NZ to find out about any opportunities which might come up there in the future. Im sure I would be in a better situation by now to negotiate some decent teaching work than when I first graduated.
Thanks for the hugs too :)
Magicpill, yes, you are right, I have written a polite and friendly email to my friend asking why she keeps raising the rent and if she has any problems with me living there. Now I am waiting with baited breath to see what she replies.
I have to keep saying though, that when I was working the 25 hour week I felt good and coped well with life, Im wondering if I can trim back some of my courses and still keep things financially viable?
The other good thing which has happened in the past four months is meeting someone special and experiencing a loving and romantic relationship, first time in years. Its been great, and he has been as supportive as possible about the Fibro, but he also suffers from some sort of mood disorder and I think low self esteem. Every so often when we get close and things are going well, he seems to pull back and hide for a time, saying he feels too depressed to talk. Ive learnt his patterns now, and try not to freak out and feel abandoned every time he does this. Now this is really adding to the complications!
We also have a language barrier in that he doesn't speak English (don't I pick my challenges? but he has been the best German teacher ever)
wow - well we've also had some lovely times together and I guess the honeymoon is over and we both get to know the real person behind the happy mask. I am learning to slowly reveal more about the limitations of my fibro (scary) and I hope he will feel able to share his down days with me more. Another reason which stops me jumping on a plane back to NZ too, he is interested in coming back with me at some point but does not want to leave his 16yr old son for too long either. Ahhh life!!!
I love you guys so much :)
Good luck and big big happy wishes!
Your husband and daughter--tell them you are going to have to cut back your hours and won't be able to help them (or as much).
As for going back to NZ, why not set a goal of rethinking it in 6 months and meanwhile find a cheaper place to live (or negociate with your friend for a compromise) and cut your hours back and see how that affects your fibro.
Then, if all else fails, you can go back with the knowledge that you tried. Fibro can get worse, waxes and wanes, as you well know.
Take care
I'm going crazy just trying to take care of my body, let alone anything else.
Best of luck.
Yesterday I felt like a headless chicken running around with a zillion possibilities crowding my brain, mixed with guilt and despair.
Ive written to my 'boss' at the language school to ask her advice on what to do about the rent situation, she has become more of a friend and will know a lot more about the legal situation and available renting options here as a long term local.
Yes Leo - there is a guy in there as well! and its been lovely but I could also write some hilarious/tragic stories about new romance and passion with 50 plus and Fibro (he is about to turn 60 and has a back injury too) so its been like a situation comedy in the bedroom here at times -
I will spare you the TMI ;)
Yes, teaching can be tough at times on the brain, up until now Ive been teaching small groups or one to one Business and Technical English, in a mostly rather informal setting. The students have been delightful and Ive really enjoyed the work. Last month I started lecturing at the Uni and it sure needs a lot more energy. I really have to research the subjects and prepare the right material in advance. The sessions last from 8am to 11.15 with time for a quick coffee at my desk, and dealing with theses sessions are not so easy.
The students can be rude, don't pay attention and talk amongst themselves, I am constantly having to act like a parent by monitoring their behaviour and keeping them engaged and interested. I also have to design the curriculum, all the lesson plans and the exams.
Its a hell of a lot of thinking and talking. I think this is what has pushed me over the edge fatigue wise. My contract goes until mid-July, then I can decide whether I renew or not.
On top of these hours I have hours of lesson preparation and marking homework in the evenings so no wonder I feel burnt out by Fridays.
As for going back to NZ by disability certificate (which took several years of tests, specialists and reports to be approved) should still be valid and I should be able to claim some financial support to top me up while working part time or not working at all. Its just the idea of having to go back and ask for support money which really hurts my pride. Rent and food are extremely expensive in Auckland, NZ.
I am vacillating between staying here or going every day, but its a good idea to give myself a time limit. In July my contracts end and I will have been here 1 year - maybe I will make the decision then.
Thanks again for all your comments and sensible ideas - you guys really are awesome and wonderful :)
Whatever you can go to calm your mind will help you make some headway in your predicament.
You've earned your disability payment in NZ. That's what it's there for. Nobody wants to be disabled and no one wants NOT to be able to work. Take care and let us know?