Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
oh man where do i start?
last year i was trying to start my own support group for fibromyalgia, right? so i spoke to my pain psychologist and my rep from the American Legion about it. both gave me reports that both the VA and the hospital attached to it (Tripler Army Hosp) DOES NOT have room or the MDs available for me.
so i decided to start my group else where, like at the Oahu Veterans Center. i made flayers and passed em out every where, the VA,and all around the Tripler hospital as well. i brought some up to a pain clinic on the 8th floor as well (for their pain patients with fms). told them to call me about it.
no call. ...follow up with them... still no call...
made new phamlets about 2 months ago and brought them some to them again. still no call.
NOW... TODAY
i go to the 8th floor for a consult my PCM put in for me to back to them for this "new pain program". good news is the pain specialist says he is referring me to POOL THERAPY!!! YAY!!!! i'm so excited to start it. BUT! then he tells me he's referring me to their new fibromyalgia support group! ...
hmm... all of a sudden there's a new FMS group? well i think nothing of it and don't want to just to cnclusions. but then the lady at the front desk tells me that the group is EVERY OTHER THURSDAY. just like my group. then she gives me the dates and IT"S THE EXACT SAME DATES AS MY GROUP!!!!! WTF!!!!!
what am i supposed to think of this???? i'm very hurt and feel like i have been back stabbed and slapped in the face!!! IF you were me, how you feel??? i'm so damn mad about it!
last year i was trying to start my own support group for fibromyalgia, right? so i spoke to my pain psychologist and my rep from the American Legion about it. both gave me reports that both the VA and the hospital attached to it (Tripler Army Hosp) DOES NOT have room or the MDs available for me.
so i decided to start my group else where, like at the Oahu Veterans Center. i made flayers and passed em out every where, the VA,and all around the Tripler hospital as well. i brought some up to a pain clinic on the 8th floor as well (for their pain patients with fms). told them to call me about it.
no call. ...follow up with them... still no call...
made new phamlets about 2 months ago and brought them some to them again. still no call.
NOW... TODAY
i go to the 8th floor for a consult my PCM put in for me to back to them for this "new pain program". good news is the pain specialist says he is referring me to POOL THERAPY!!! YAY!!!! i'm so excited to start it. BUT! then he tells me he's referring me to their new fibromyalgia support group! ...
hmm... all of a sudden there's a new FMS group? well i think nothing of it and don't want to just to cnclusions. but then the lady at the front desk tells me that the group is EVERY OTHER THURSDAY. just like my group. then she gives me the dates and IT"S THE EXACT SAME DATES AS MY GROUP!!!!! WTF!!!!!
what am i supposed to think of this???? i'm very hurt and feel like i have been back stabbed and slapped in the face!!! IF you were me, how you feel??? i'm so damn mad about it!
Go. It was always a GREAT idea.
I know you feel hurt and insulted but DON'T let it get you down - that will only hurt your health. You can choose to NOT let it bug you. Come up with positives, like, now it's getting done and you don't have to do it. More energy for you!
I'm with unduki....now, go and get the positives without having to do all work!
HUGS from down south :)
That is pretty low and underhanded and I think I'd tell them that too.