Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Anyone have a deterioration in appearance?

ZollyCoko
ZollyCoko
I know that a lot of people called fibromyalgia and invisible illness... But mine is starting to be really recognizable. And when I say really recognizable, I guess what I mean is you can tell that there something off with me. I look tired and run down. I barely have energy to shower. I used to put great detail into my appearance and liked to shop for clothes. .I'm still young, 31. My Fibromyalgia is not as invisible as it used to be. Anyone else?
CarrieinSK
CarrieinSK
I used to but lost some weight and trying to look better lately. For me, it's all about the comfort and textures. I can't wear a bra, underwear, tight anything, man made materials or anything with formaldehyde. I'd do great at a nudist colony but it gets to be -45C in the winters around here so that wouldn't work! LOL

I HATE clothes shopping and get tired out even trying on a pair of pants or top. I tend to psych myself up, try on about 10 things at once and take little breaks. I love shopping with my mom as she has a handicap placard. Most days, I need it as much as her, but my doc won't give me one...I've left many a malls and stores bawling from pain and fatigue, barely making it to the car some days. Not fun. Then, another day, I can whisk in, get my stuff and get out, no problem...this illness sucks!
LizabethJ
LizabethJ
Me as well. I take showers at night, no way I can do it in the morning that much anymore. That might help you. I also have not wore make-up in years, only to special events. I think my friends are use to seeing the make-up free now. But, I miss the days my face did not hurt after putting make-up on. I am only 30 and used to put so much time into my hair and makeup. I loved doing my make up and I have very curly hair so it takes a while to blow-dry, well, now after my shower I need a nap and it hurts to even hold the blowdryer up. I wish I had a personal assistance, but I just do what I can each day. There are lots of cool ways to wear your hair up. I do bc, it hurts my face sometimes. People can see in my eyes now that there is pain behind them. i use to hide it, but now I can not. Hang in there. :)